Evidence map›Paper›PMID 34535457›Full record

ArticleBMJ open quality2021

Questionnaire-based service evaluation of the efficacy and usefulness of SEREN: a structured education programme for children and young people diagnosed with type 1 diabetes mellitus.

Rashmi Sarah D'Souza, Matthew Ryan, Esther Hawkes, Claire Baker, Yvonne Davies, Judith R-Screen, Jonathan Price, Rebekah Pryce, Nirupa A D'Souza

Abstract read
In one paragraph

Article in BMJ open quality, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Rashmi Sarah D'SouzaInstitute for Women's and Children's Health, King's College London, London, UK.ORCID 0000-0002-9690-8288
Matthew RyanDepartment of Paediatrics, Swansea Bay University Health Board, Port Talbot, UK.
Esther HawkesSchool of Medicine, University of Southampton, Southampton, UK.
Claire BakerDepartment of Nutrition and Dietetics, Aneurin Bevan University Health Board, Headquarters, St Cadoc's Hospital, Newport, UK.
Yvonne DaviesDepartment of Paediatrics, Hywel Dda University Health Board, Ystwyth Building, Hafan Derwen, Carmarthen, UK.
Judith R-ScreenDepartment of Paediatrics, Betsi Cadwaladr University Health Board, Bangor, UK.
Jonathan PriceImprovement Cymru, Public Health Wales, Cardiff, UK.
Rebekah PryceConsultant Endocrinologist, Department of Paediatrics, Noah's Ark Children's Hospital, Heath Park, Cardiff, UK.
Nirupa A D'SouzaDepartment of Paediatrics, Princess of Wales Hospital, Bridgend, UK nirupa.dsouza@wales.nhs.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo evaluate the usefulness and effectiveness of a new structured education module for children with type 1 diabetes: S

designRetrospective questionnaire-based service evaluation.

setting12/14 paediatric diabetes centres across Wales took part.

participantsChildren diagnosed with type 1 diabetes 1 year before (pre-SEREN group) and 1 year after the introduction of SEREN (post-SEREN group) were selected using a national diabetes register. RESOURCE: 'Diabetes at Diagnosis' delivers structured education to empower children and families with self-management of type 1 diabetes. EVALUATION: Primary outcomes were patient-reported effectiveness and user-friendliness of the educational resources and quality of life (PedsQL). Age-appropriate child and parent questionnaires were provided. Clinical outcomes included glycated haemoglobin (HbA1c) at 6 and 12 months, service engagement and diabetes-related hospital admissions in the first year.

results89/106 responded pre-SEREN and 108/115 post-SEREN, with no demographic differences at diagnosis. Parent scores for educational package evaluation significantly improved post-SEREN, with a non-significant trend towards improved results in children. PedsQL scores were similar. There was no change in HbA1c overall. Subgroup analyses at 12 months showed a trend towards a lower HbA1c in key stage 1-2 (62 vs 58 mmol/mol, p=0.06) and increased HbA1c in key stage 3-4 (56 vs 66 mmol/mol, p=0.009). There were no differences in hospital admissions or missed clinic appointments.

conclusionsThis is an evaluation of the only standardised type 1 diabetes structured education programme in use for children throughout Wales. This module improved parent-reported outcomes and showed a non-significant trend towards improved usefulness in children, without a difference in a PedsQL scores overall. Ongoing evaluation of the cohort who received subsequent SEREN modules may show the long-term benefit of the programme.

Indexed as

Diabetes Mellitus, Type 1AdolescentChildCost-Benefit AnalysisHumansQuality of LifeRetrospective StudiesSurveys and Questionnairesdiabetes mellitusevaluation methodologypaediatricspatient educationpatient reported outcome measures

Identifiers

PMID34535457
PMCPMC8451284

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.