ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2022
Patient-level barriers and facilitators to completion of patient-reported outcomes measures.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
41 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Strategies to promote the completion of patient-reported outcome measures by culturally and linguistically diverse and Indigenous Peoples in clinical care settings: A systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Pooled it
- Predictors for non-response to PROMs across three areas of inpatient rehabilitation - a nationwide cross-sectional study in Switzerland.Journal of patient-reported outcomes · 2026Observational
- Strengthening the patient perspective in quality development: a mixed-methods observational study on suitability of the PROMIS GH-10 in Swiss inpatient rehabilitation.BMC health services research · 2026Observational
- Development of an easy-read version of the Brain Injury associated Visual Impairment - Impact Questionnaire (BIVI-IQ).Clinical rehabilitation · 2026Article
- Designing oncology-specific patient-reported outcome dashboards: end-user preferences for reference curve inclusion and visualization in pediatric cancer care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Physiotherapist and nurse perspectives on the acceptability and timing of patient-reported outcome measures in clinical practice: Balancing standardisation and flexibility.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Refining a multimedia patient-reported outcomes measure for patients with low literacy.Journal of patient-reported outcomes · 2026Article
- Canadian French translation of the BREAST-Q Breast Conserving Therapy module.Journal of patient-reported outcomes · 2026Article
- Challenges in Clinical Research for Nerve Injuries (Nerve SPACE 2025).Journal of hand surgery global online · 2026Article
- Patient education on PROM completion in clinical care settings: a scoping review.Journal of patient-reported outcomes · 2026Article
- Sociodemographic and Clinical Factors Associated With Response to 1-Year Postarthroplasty Patient-Reported Outcome Measures.Arthroplasty today · 2026Article
- Usability and added value of the Value@WORK-Q23: insights from user testing of a standard set of key work-related outcomes for patients with cardiovascular diseases in real-life consultations.BMC health services research · 2026Article
- Patient-reported outcomes - the missing link to advancing light chain (AL) amyloidosis clinical research.Blood reviews · 2025Review
- Mental Health Care Provider Experiences of Remote Measurement-Based Care Rollout in an Urban Safety-Net Psychiatry Department: Three-Site Mixed Methods Hypothesis-Generating Implementation Study.JMIR formative research · 2025Article
- Collecting patient-reported outcomes data in transgender and gender diverse adults seeking surgery: barriers and facilitators from the patient perspective.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Understanding physicians' views on patient-reported outcome measures (PROMs) in lung cancer care: a qualitative approach.BMJ open quality · 2025Article
- Reliability and validity of the interRAI Check-Up Self-Reported (CUSR) Assessment.BMC geriatrics · 2025Article
- A shortened 10-item Spine Functional Index: clinimetric properties indicate a reliable, responsive and practical measure.BMC musculoskeletal disorders · 2025Article
- Patient-Reported Outcomes Program at Scale at a Cancer Center.JCO clinical cancer informatics · 2025Article
- Improved clinical care and capacity through an integrated electronic patient-reported outcome measure and health record system in inflammatory arthritis.Rheumatology advances in practice · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo identify patient-level barriers and facilitators to completion of patient-reported outcomes measures (PROMs) in a hand and upper extremity clinic in Baltimore, Maryland.
methodsWe conducted 12 h of direct observation of PROM completion (October-November, 2020). Ethnographic observation memos were qualitatively analyzed for barriers and facilitators using rapid thematic analysis. Informed by observation findings, we conducted 17 semi-structured interviews with mixed-literacy patients, caregivers, and clinic staff to understand the patient experience when completing PROMs (November 2020-March 2021). We identified initial themes through inductive and deductive framework analysis and validated findings through subsequent interviews with member-checking.
resultsWe identified nine patient-level factors that influence PROM completion: platform design, print literacy, health literacy, technology literacy, language proficiency, physical functioning, vision, cognitive functioning, and time.
conclusionsThere are multiple distinct patient-level factors that affect PROM completion. Failure to consider these factors in PROM design and implementation may lower completion rates or prevent accurate completion, undermining PROM validity. Because certain factors affect minority populations at disproportionate rates, this may also contribute to existing health disparities.
Indexed as
Identifiers
34533759What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.