ArticleJournal of patient-reported outcomes2021
Patient perspectives on digital patient reported outcomes in routine care of inflammatory bowel disease.
Article in Journal of patient-reported outcomes, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 25 citations in OpenAlex.
- Facilitators and barriers to implementing electronic patient-reported outcome and experience measures in a health care setting: a systematic review.Journal of patient-reported outcomes · 2023Pooled it
- Health Literacy in Inflammatory Bowel Disease: A Systematic Review of Health Outcomes, Predictors and Barriers.Journal of clinical medicine · 2025Review
- What do patients and informal caregivers value in IBD care? A narrative inquiry.BMC health services research · 2025Article
- "Simpleness": a qualitative description study exploring patient perspectives on the barriers and facilitators of using digital health tools to self-manage inflammatory bowel disease.Therapeutic advances in gastroenterology · 2025Article
- Review
- Patient motivators of postoperative electronic patient-reported outcome symptom monitoring use in thoracic surgery patients: a qualitative study.Journal of patient-reported outcomes · 2024Article
- Perspective of Health Care Professionals and Cancer Survivors on the Usage of Technology in Consultations.International journal of environmental research and public health · 2024Article
- Treat-to-Target in Atopic Dermatitis.American journal of clinical dermatology · 2024Review
- Surfing the web as a patient with IBD: New horizons.United European gastroenterology journal · 2023Article
- The 2023 Impact of Inflammatory Bowel Disease in Canada: Access to and Models of Care.Journal of the Canadian Association of Gastroenterology · 2023Review
- Article
- Digital patient-reported outcomes in inflammatory bowel disease routine clinical practice: the clinician perspective.Journal of patient-reported outcomes · 2022Article
- Value Insider Season 1 Episode 2: How to Measure Quality of Life and Utility? (QoL) [Podcast].International journal of general medicine · 2022Article
- Evaluating a Digital Patient Reported Outcome Measure for Long COVID in a Community Rehabilitation Service.Journal of primary care & community healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDigital patient reported outcomes are used increasingly in daily care and treatment of inflammatory bowel disease. Their purpose includes increased focus on patient wellbeing, reduction in avoidable follow-up consultations and increased patient self-management. However, implementation issues occur and studies indicate patients may have concerns, particularly regarding having fewer face-to-face consultations. This study aims to explore patients' perspectives of use and non-use of digital patient reported outcomes and to understand the mechanisms underpinning patient reluctance to engage with this health technology.
resultsSixteen patients with inflammatory bowel disease at a regional hospital in Denmark were interviewed about their experiences of, and perspectives on, digital patient reported outcomes. A certain level of eHealth literacy was found to be a fundamental condition for use, while other factors were barriers or facilitators for use of digital PROs. Patients' main concerns were about potential consequences for their care and relationship with the clinic. Most patients in stable remission were satisfied with the hospital being a "life-line" if their symptoms worsened, and perceived digital patient reported outcomes to be an efficient tool to establish that "life-line". Patients with severe symptoms and a high degree of emotional distress related to their disease valued the potential for digital patient reported outcomes to increase their clinicians' focus on mental health and extra-intestinal symptoms.
conclusionThis study found that if patients had sufficient digital literacy, they perceived digital patient reported outcomes to be a useful replacement for face-to-face consultations. However, they were concerned about digital patient reported outcomes' effect on the patient-clinician relationship and its ability to detect worsening of symptoms. These concerns may be mitigated by good patient-clinician relationships, and the option for patients to maintain direct telephone contact with their gastroenterology specialist.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.