ArticleJournal of advanced nursing2021
Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed-methods study.
Article in Journal of advanced nursing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed.
- Psychological Burden and Communication Challenges Among Relatives of Older Patients With Dementia-A Cross-Sectional Study in an Acute Psychiatric Hospital.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Plant Polysaccharides in Alzheimer's Disease: From Phytochemistry to Microbiota-Gut-Brain Axis Mechanisms-Resolving the Pharmacokinetic-Pharmacodynamic Paradox.Molecules (Basel, Switzerland) · 2026Review
- Dementia friendly in the context of hospitalization: A concept analysis using the Walker & Avant Method.Journal of advanced nursing · 2024Review
- Involvement, topics, and roles of nurses in shared decision-making with patients with dementia in acute hospitals: An integrative review.Nursing open · 2023Review
- A shared decision-making model about care for people with severe dementia: A qualitative study based on nutrition and hydration decisions in acute hospitals.International journal of geriatric psychiatry · 2023Article
- Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed-methods study.Journal of advanced nursing · 2021Article
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimsTo explore the experiences of informal caregivers of people with dementia with the hospitalization of their relative concerning patient care, interactions with nurses, caregivers' situation and the acute hospital environment.
designMixed-methods design.
methodsThe data were collected using an online questionnaire among a panel of caregivers (n = 129), together with a focus group and individual interviews from February to November 2019. The data were triangulated and analysed using a conceptual framework.
resultsAlmost half of the respondents were satisfied with the extent to which nurses considered the patient's dementia. Activities to prevent challenging behaviours and provide person-centred care were rarely seen by the caregivers. Caregivers experienced strain, intensified by a perceived lack of adequate communication and did not feel like partners in care; they also expressed concern about environmental safety. A key suggestion of caregivers was to create a special department for people with dementia, with specialized nurses.
conclusionPositive experiences of caregivers are reported in relation to how nurses take dementia into account, involvement in care and shared decision making. Adverse experiences are described in relation to disease-oriented care, ineffective communication and an unfamiliar environment. Caregivers expressed increased involvement when included in decisions and care when care was performed as described by the triangle of care model. Caregivers reported better care when a person-centred approach was observed. Outcomes can be used in training to help nurses reflect and look for improvements. IMPACT: This study confirms that caregivers perceive that when they are more involved in care, this can contribute to improving the care of patients with dementia. The study is relevant for nurses to reflect on their own experiences and become aware of patients' caregivers' perspectives. It also provides insights to improve nurses' training and for organizations to make the care and environment more dementia-friendly.
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