Evidence map›Paper›PMID 34529251›Full record

ArticleJournal of autism and developmental disorders2022

Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities.

Melissa Maye, Brian A Boyd, Frances Martínez-Pedraza, Alycia Halladay, Audrey Thurm, David S Mandell

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
42citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

42 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Systematic Review: The Psychosocial Impacts of Autism-Related Genetic Testing.Journal of the American Academy of Child and Adolescent Psychiatry · 2026
    Pooled it
  2. Pooled it
  3. Trial
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Describing the communication of autistic people during experiences of distress: A scoping review.Autism : the international journal of research and practice · 2026
    Article
  10. Article
  11. Article
  12. Review
  13. Article
  14. Article
  15. Advances in neurodevelopmental disorders · 2025
    Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Introduction to the Forum: Intersectional Approaches to Language in Autism.Perspectives of the ASHA special interest groups · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Melissa MayeCenter for Health Policy and Health Services Research, Henry Ford Health System, 3A32, 3rd Floor, One Ford Place, Detroit, MI, 48202, USA. MMaye1@hfhs.org.ORCID http://orcid.org/0000-0002-0408-7823
Brian A BoydJuniper Gardens Children's Project, University of Kansas, Kansas City, KS, USA.
Frances Martínez-PedrazaDepartment of Psychology, Florida International University, Miami, FL, USA.
Alycia HalladayRutgers University, Piscataway, NJ, USA.
Audrey ThurmNational Institute of Mental Health (NIMH)'s Intramural Research Program (IRP), Bethesda, MD, USA.
David S MandellCenter for Mental Health, Pearlman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.

Funding

Neurodevelopmental and Behavioral Phenotyping ZICMH002961 · NIMH · NATIONAL INSTITUTE OF MENTAL HEALTH · PI THURM, AUDREY · 2017 to 2025
$12.6M
HRSA HHS UT3MC39436Intramural NIH HHS ZIC MH002961NIMH NIH HHS 1ZICMH002961
6 · The paper itself

Abstract

Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making.

Indexed as

Autism Spectrum DisorderAutistic DisorderBiasCultural CompetencyHealthcare DisparitiesHumansAutismEngagementEthnicityParticipationRaceSocioeconomic status

Identifiers

PMID34529251
PMCPMC8924013

What OpenQuestion holds

Textmetadata
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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.