ArticleJAMA network open2021
Assessment of Prevalence of Adolescent Patient Portal Account Access by Guardians.
Article in JAMA network open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
29 citing papers in PubMed.
- A scoping review of studies on secure messaging through patient portals: persistent challenges and potential solutions.npj health systems · 2026Article
- "Really Hard to Navigate": A Qualitative Study of Motivators, Barriers, and Supports of Adolescent-Clinician Communication on Patient Portals.Journal of pediatric and adolescent gynecology · 2025Article
- Parental Access to Adolescent Online Healthcare Portals: Benefits, Problems, and Barriers.Applied clinical informatics · 2025Article
- Adolescent Comfort With Sexual Orientation and Gender Identity Collection and Preferences for Electronic Health Record Documentation in the Ambulatory Setting.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2025Article
- Patient Portal Use Among Patients With Vascular Anomalies and Their Caregivers.Pediatric blood & cancer · 2025Article
- Disparities in Patient Portal Activation and Usage at a Large Pediatric Academic Institution.Journal of racial and ethnic health disparities · 2025Article
- Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles.BMC medical ethics · 2025Article
- Potential of patient portals to enhance adolescent asthma care engagement.Health care transitions · 2025Article
- Using a Large Language Model to Identify Adolescent Patient Portal Account Access by Guardians.JAMA network open · 2024Article
- Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Electronic Health Record Adolescent Confidentiality in a Safety Net Setting.Applied clinical informatics · 2023Article
- Engaging Adolescents in Using Online Patient Portals.JAMA network open · 2023Article
- Patient Portal Privacy: Perspectives of Adolescents and Emerging Adults Living with HIV and the Parental/Guardian Role in Supporting Their Care.Applied clinical informatics · 2023Article
- Characteristics of Adolescents Who Use Secure Messaging on a Health System's Patient Portal.Pediatrics · 2023Article
- Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else).Applied clinical informatics · 2023Article
- Sharing Clinical Notes while Protecting Adolescent Confidentiality and Maintaining Parental Insight.Applied clinical informatics · 2023Article
- A Natural Language Processing Model to Identify Confidential Content in Adolescent Clinical Notes.Applied clinical informatics · 2023Article
- Improving Cancer Care Communication: Identifying Sociodemographic Differences in Patient Portal Secure Messages Not Authored by the Patient.Applied clinical informatics · 2023Article
- Creating a Guardrail System to Ensure Appropriate Activation of Adolescent Portal Accounts.Applied clinical informatics · 2023Article
- The Prevalence of Confidential Content in Adolescent Progress Notes Prior to the 21st Century Cures Act Information Blocking Mandate.Applied clinical informatics · 2023Article
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Authors and funding
16 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Importance: Patient portals can be configured to allow confidential communication for adolescents' sensitive health care information. Guardian access of adolescent patient portal accounts could compromise adolescents' confidentiality. Objective: To estimate the prevalence of guardian access to adolescent patient portals at 3 academic children's hospitals. Design, Setting, and Participants: A cross-sectional study to estimate the prevalence of guardian access to adolescent patient portal accounts was conducted at 3 academic children's hospitals. Adolescent patients (aged 13-18 years) with access to their patient portal account with at least 1 outbound message from their portal during the study period were included. A rule-based natural language processing algorithm was used to analyze all portal messages from June 1, 2014, to February 28, 2020, and identify any message sent by guardians. The sensitivity and specificity of the algorithm at each institution was estimated through manual review of a stratified subsample of patient accounts. The overall proportion of accounts with guardian access was estimated after correcting for the sensitivity and specificity of the natural language processing algorithm. Exposures: Use of patient portal. Main Outcome and Measures: Percentage of adolescent portal accounts indicating guardian access. Results: A total of 3429 eligible adolescent accounts containing 25 642 messages across 3 institutions were analyzed. A total of 1797 adolescents (52%) were female and mean (SD) age was 15.6 (1.6) years. The percentage of adolescent portal accounts with apparent guardian access ranged from 52% to 57% across the 3 institutions. After correcting for the sensitivity and specificity of the algorithm based on manual review of 200 accounts per institution, an estimated 64% (95% CI, 59%-69%) to 76% (95% CI, 73%-88%) of accounts with outbound messages were accessed by guardians across the 3 institutions. Conclusions and Relevance: In this study, more than half of adolescent accounts with outbound messages were estimated to have been accessed by guardians at least once. These findings have implications for health systems intending to rely on separate adolescent accounts to protect adolescent confidentiality.
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