Evidence map›Paper›PMID 34528892›Full record

ArticleJMIR human factors2021

Machine Learning-Based Analysis of Encrypted Medical Data in the Cloud: Qualitative Study of Expert Stakeholders' Perspectives.

Ala Sarah Alaqra, Bridget Kane, Simone Fischer-Hübner

Abstract read
In one paragraph

Article in JMIR human factors, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Trustworthy and ethical AI-enabled cardiovascular care: a rapid review.BMC medical informatics and decision making · 2024
    Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Ala Sarah AlaqraComputer Science and Information Systems, Karlstad University, Karlstad, Sweden.ORCID https://orcid.org/0000-0002-6509-3792
Bridget KaneInformation Systems, Karlstad University Business School, Karlstad, Sweden.ORCID https://orcid.org/0000-0003-3211-6529
Simone Fischer-HübnerComputer Science, Karlstad University, Karlstad, Sweden.ORCID https://orcid.org/0000-0002-6938-4466

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThird-party cloud-based data analysis applications are proliferating in electronic health (eHealth) because of the expertise offered and their monetary advantage. However, privacy and security are critical concerns when handling sensitive medical data in the cloud. Technical advances based on "crypto magic" in privacy-preserving machine learning (ML) enable data analysis in encrypted form for maintaining confidentiality. Such privacy-enhancing technologies (PETs) could be counterintuitive to relevant stakeholders in eHealth, which could in turn hinder adoption; thus, more attention is needed on human factors for establishing trust and transparency.

objectiveThe aim of this study was to analyze eHealth expert stakeholders' perspectives and the perceived tradeoffs in regard to data analysis on encrypted medical data in the cloud, and to derive user requirements for development of a privacy-preserving data analysis tool.

methodsWe used semistructured interviews and report on 14 interviews with individuals having medical, technical, or research expertise in eHealth. We used thematic analysis for analyzing interview data. In addition, we conducted a workshop for eliciting requirements.

resultsOur results show differences in the understanding of and in trusting the technology; caution is advised by technical experts, whereas patient safety assurances are required by medical experts. Themes were identified with general perspectives on data privacy and practices (eg, acceptance of using external services), as well as themes highlighting specific perspectives (eg, data protection drawbacks and concerns of the data analysis on encrypted data). The latter themes result in requiring assurances and conformance testing for trusting tools such as the proposed ML-based tool. Communicating privacy, and utility benefits and tradeoffs with stakeholders is essential for trust. Furthermore, stakeholders and their organizations share accountability of patient data. Finally, stakeholders stressed the importance of informing patients about the privacy of their data.

conclusionsUnderstanding the benefits and risks of using eHealth PETs is crucial, and collaboration among diverse stakeholders is essential. Assurances of the tool's privacy, accuracy, and patient safety should be in place for establishing trust of ML-based PETs, especially if used in the cloud.

Indexed as

eHealthencryptioninterviewsmachine learningmedical data analysisperspectivesprivacy-enhancing technologiesstakeholderstradeoffs

Identifiers

PMID34528892
PMCPMC8485196

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.