ArticleBMC family practice2021
Needs of patients with dementia and their caregivers in primary care: lessons learned from the Alzheimer plan of Quebec.
Article in BMC family practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it, 36 citations in OpenAlex.
- Health Information Technology Supporting Adherence Memory Disorder Patients: A Systematic Literature Review.Applied clinical informatics · 2024Pooled it
- The effectiveness of educational interventions in the community that aim to improve informal carers knowledge of dementia anatomy, physiology, progression, and impact on behavior: a systematic review.Frontiers in dementia · 2023Pooled it
- Identifying and Addressing Unmet Needs in Dementia: The Role of Care Access and Psychosocial Support.International journal of geriatric psychiatry · 2025Trial
- Sociodemographic and Clinical Characteristics of People Living with Dementia and Their Associations with Unmet Healthcare Needs: Insights from the Baseline Assessment of the InDePendent Study.Journal of Alzheimer's disease : JAD · 2024Trial
- Co-designing an Outpatient Clinical Decision Support Prototype for Managing Social Risks in Patients Living with Dementia.Applied clinical informatics · 2026Article
- Article
- The prevalence of Alzheimer's disease among diabetic patients in Saudi Arabia.Saudi medical journal · 2025Article
- Identifying the needs of natural caregivers caring for a person with dementia: a mixed method study.BMC primary care · 2025Article
- Exploring the perceptions of New Zealand Chinese dementia carers on the adapted world health organization iSupport manual: A qualitative study.Dementia (London, England) · 2025Article
- Formulating recommendations to improve care for persons living with dementia: deliberative dialogues with multiple stakeholders in the province of Quebec, Canada.BMC health services research · 2024Article
- Medication management information priorities of people living with dementia and their carers: a scoping review.Age and ageing · 2024Article
- Supporting caregivers of people with dementia: insights from Demensia KITA mobile application online content development.Scientific reports · 2024Article
- Family physicians' preferences for education to support family caregivers: a sequential mixed methods study.BMC primary care · 2024Article
- E-bibliotherapy for improving the psychological well-being of informal caregivers of people with dementia: a randomized controlled trial protocol.BMC nursing · 2024Article
- Alzheimer's disease: a comprehensive review of epidemiology, risk factors, symptoms diagnosis, management, caregiving, advanced treatments and associated challenges.Frontiers in medicine · 2024Review
- Needs of older people living with dementia in low and middle-income Asian countries: A scoping review.Dementia (London, England) · 2023Article
- Outcome measures for Alzheimer's disease: A global inter-societal Delphi consensus.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- Barriers to and recommendations for integrating the age-friendly 4-Ms framework into electronic health records.Journal of the American Geriatrics Society · 2023Article
- Dynamics of Interaction among Professionals, Informal Supporters, and Family Caregivers of People with Dementia along the Dementia Care Pathway: A Nationwide Survey in Japan.International journal of environmental research and public health · 2023Article
- Primary health care providers knowledge of dementia and cognitive assessment tools for elderly populations in Southeast Nigeria: A pilot survey.SAGE open medicine · 2023Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundPersons living with dementia have various health and social care needs and expectations, some which are not fully met by health providers, including primary care clinicians. The Quebec Alzheimer plan, implemented in 2014, aimed to cover these needs, but there is no research on the effect this plan had on the needs and expectations of persons living with dementia. The objective of this study is to identify persons living with dementia and caregivers' met and unmet needs and to describe their experience.
methodsThis is a sequential mixed methods explanatory design: Phase 1: cross-sectional study to describe the met and unmet health and social care needs of community-dwelling persons living with dementia using Camberwell Assessment of Need of the Elderly and Carers' Assessment for Dementia tools. Phase 2: qualitative descriptive study to explore and understand the experiences of persons living with dementia and caregivers with the use of social and healthcare services, using semi-structured interviews. Data from phase 1 was analyzed with descriptive statistics, and from phase 2, with inductive thematic analysis. Results from phases 1 and 2 were compared, contrasted and interpreted together.
resultsThe mean total number of needs reported by the patients was 5.03 (4.48 and 0.55 met and unmet needs, respectively). Caregivers had 0.52 met needs (3.16 unmet needs). The main needs for both were memory, physical health, eyesight/hearing/communication, medication, looking after home, money/budgeting. Three categories were mentioned by the participants: Persons living with dementia and caregiver's attitude towards memory decline, their perception of community health services and of the family medicine practice.
conclusionsOur study confirms the findings of other studies on the most common unmet needs of the patients and caregivers that are met partially or not at all. In addition, the participants were satisfied with access to care, and medical services in primary practices, being confident in their family. Our results indicate persons living with dementia and their caregivers need a contact person, a clear explanation of their dementia diagnosis, a care plan, written information on available services, and support for the caregivers.
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