ArticleJournal of health politics, policy and law2022
No Equity without Data Equity: Data Reporting Gaps for Native Hawaiians and Pacific Islanders as Structural Racism.
Article in Journal of health politics, policy and law, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
50 citing papers in PubMed, 2 syntheses or guidelines pooled it, 78 citations in OpenAlex.
- Cervical Cancer Prevention and Treatment Disparities Among Native Hawaiian and Pacific Islanders: A Systematic Review and Meta-Analysis.Journal of surgical oncology · 2026Pooled it
- Race and Ethnicity Representation in Phase 2/3 Oncology Clinical Trial Publications: A Systematic Review.JAMA health forum · 2024Pooled it
- "This Work Belongs to Everyone": Understanding Health Equity Practitioners' Approaches to Addressing Structural Racism in the Context of Racial Health Equity Practice.Journal of racial and ethnic health disparities · 2026Article
- Bridging Culture and Prevention: Facilitators of Success in a Culturally Grounded Drug Prevention Program for Rural Hawaiian Youth.Translational issues in psychological science · 2026Article
- A New Playbook: State-Driven Solutions for Resilient Health Data.The Milbank quarterly · 2026Article
- "No data, no problem"? A critical reflection of health monitoring systems and equity during COVID-19 in Finland.BMC health services research · 2026Article
- Differential gastrointestinal mortality in Native Hawaiian/Pacific Islander and Asian subgroups in the U.S.: a cross-sectional analysis of national mortality surveillance data 2018-2023.Lancet regional health. Americas · 2026Article
- Native Hawaiian and Pacific Islander community-led survey on COVID-19 and willingness to participate in clinical trials.BMC public health · 2026Article
- Mental health self-stigma moderates the effect of social support on depression, anxiety and stress among young adult Pacific Islanders.SSM. Mental health · 2025Article
- The development, evolution, and maintenance of structural racism for the study of health inequities: An expanded framework for Asian, Black, Hispanic, Indigenous, and White Americans.Social science & medicine (1982) · 2025Review
- Food Insecurity and Chronic Disease Among Native Hawaiians and Pacific Islanders on the Continent During COVID-19.Journal of racial and ethnic health disparities · 2025Article
- Reflecting on power: the inadequacies of small sample size technique through the lens of Indigenous health.American journal of epidemiology · 2025Article
- Assessing Structural Racism Measures on Health Outcomes of Asian Americans, Native Hawaiians, and Pacific Islanders: A Scoping Review.Journal of racial and ethnic health disparities · 2025Article
- Insufficient sample size or insufficient attention to marginalized populations? A practical guide to moving observational research forward.American journal of epidemiology · 2025Article
- Excess Deaths in California During the COVID-19 Pandemic, by Healthy Places Index Quartile, February 2020-April 2022.Public health reports (Washington, D.C. : 1974) · 2025Article
- Provision of disaggregated race and ethnicity information in hospital visits.Health affairs scholar · 2025Article
- Digital Health Readiness: Making Digital Health Care More Inclusive.JMIR mHealth and uHealth · 2024Article
- Racial and Ethnic Disparities in Age-Specific All-Cause Mortality During the COVID-19 Pandemic.JAMA network open · 2024Article
- Inequities in Patient Access to Care Among Asian American, Native Hawaiian, and Pacific Islander Adults in Medicaid.Journal of racial and ethnic health disparities · 2024Article
- Native Hawaiian and Pacific Islander populations in genomic research.NPJ genomic medicine · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 4 institutions in 1 country.
Funding
Abstract
Data on the health and social determinants for Native Hawaiians and Pacific Islanders (NHPIs) in the United States are hidden, because data are often not collected or are reported in aggregate with other racial/ethnic groups despite decades of calls to disaggregate NHPI data. As a form of structural racism, data omissions contribute to systemic problems such as inability to advocate, lack of resources, and limitations on political power. The authors conducted a data audit to determine how US federal agencies are collecting and reporting disaggregated NHPI data. Using the COVID-19 pandemic as a case study, they reviewed how states are reporting NHPI cases and deaths. They then used California's neighborhood equity metric-the California Healthy Places Index (HPI)-to calculate the extent of NHPI underrepresentation in communities targeted for COVID-19 resources in that state. Their analysis shows that while collection and reporting of NHPI data nationally has improved, federal data gaps remain. States are vastly underreporting: more than half of states are not reporting NHPI COVID-19 case and death data. The HPI, used to inform political decisions about allocation of resources to combat COVID-19 in at-risk neighborhoods, underrepresents NHPIs. The authors make recommendations for improving NHPI data equity to achieve health equity and social justice.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.