Evidence map›Paper›PMID 34519072›Full record

ArticleChild: care, health and development2022

Coping strategies used by mothers and fathers following diagnosis of congenital heart disease.

Abigail C Demianczyk, Colleen F Bechtel Driscoll, Allison Karpyn, Amanda Shillingford, Anne E Kazak, Erica Sood

Open access · greenAbstract read
In one paragraph

Article in Child: care, health and development, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
2.7field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it, 30 citations in OpenAlex.

  1. Pooled it
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  11. Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports.Journal of perinatology : official journal of the California Perinatal Association · 2025
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  14. Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Abigail C DemianczykDepartment of Child and Adolescent Psychiatry and Behavioral Sciences and Cardiac Center, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Colleen F Bechtel DriscollDivision of Behavioral Health, Department of Pediatrics, Nemours/Alfred I. duPont Hospital for Children, Wilmington, Delaware, USA.
Allison KarpynCenter for Research in Education and Social Policy, Department of Human Development and Family Sciences, University of Delaware, Newark, Delaware, USA.
Amanda ShillingfordCardiac Center, Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Anne E KazakCenter for Healthcare Delivery Science, Nemours Children's Health System, Wilmington, Delaware, USA.
Erica SoodDepartment of Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, PA, USA.ORCID 0000-0001-8817-4213
Alfred I. duPont Hospital for Children · USChildren's Hospital of Philadelphia · USThomas Jefferson University · USUniversity of Delaware · US

Funding

Subproject Title: Clinical Research Education, Mentoring and Career Development CoreU54GM104941 · NIGMS · UNIVERSITY OF DELAWARE · PI Megan M Wenner · 2013 to 2026
$60.5M
PEDSnet Scholars: A Training Program for Pediatric Learning Health System ResearchersK12HS026393 · AHRQ · CHILDREN'S HOSP OF PHILADELPHIA · PI FORREST, CHRISTOPHER B, MOON, JEANHEE · 2018 to 2022
$4.0M
Agency for Healthcare Research and Quality 1K12HS026393-01AHRQ HHS K12 HS026393Mend a Heart FoundationNIGMS NIH HHS U54 GM104941
6 · The paper itself

Abstract

backgroundParents of children with congenital heart disease (CHD) exhibit high rates of mental health difficulties, which can influence child developmental and behavioural outcomes. While extensive research has focused on CHD-related stressors that contribute to parental mental health difficulties, few studies have investigated parental coping strategies that may mitigate or heighten risk. This study aimed to identify parental coping strategies following diagnosis of CHD and compare use of coping strategies among different groups (mothers vs. fathers; prenatal vs. postnatal diagnosis).

methodsA diverse sample of 34 parents (20 mothers and 14 fathers) of young children with CHD participated in semistructured interviews focused on their responses to CHD-related stressors. Coping strategies were identified from qualitative data and categorized according to the COPE Inventory, an instrument that assesses common adult responses to stress. Coping strategies deemed as unique to parenting a critically ill child were identified. χ

resultsParents described using between 1 and 10 different adaptive and maladaptive strategies measured by the COPE Inventory. Most parents (82.35%) also described coping strategies that may be unique to parenting a critically ill child. Mothers were more likely than fathers to report a focus on and venting of emotions (70% vs. 21.43%) and behavioural disengagement (25% vs. 0%). Compared with parents receiving a postnatal CHD diagnosis, those receiving a prenatal diagnosis described a greater variety of coping strategies (6.23 vs. 4.52) and more often reported positive reinterpretation and growth (69.23% vs. 14.29%), behavioural disengagement (38.46% vs. 0%) and denial (38.46% vs. 0%).

conclusionsParents of children with CHD utilize a variety of coping strategies, some of which are maladaptive. Interventions tailored to the needs of mothers and fathers of young children with CHD, including those receiving a postnatal diagnosis, are needed to promote adaptive coping and optimize family psychosocial outcomes.

Indexed as

Heart Defects, CongenitalMothersAdaptation, PsychologicalAdultChildChild, PreschoolFemaleHumansParentingParentsPregnancyStress, Psychologicalcongenital heart diseasecopingmental healthparentingpsychosocial

Identifiers

PMID34519072
PMCPMC9007227
OpenAlexW3201205398

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.