ArticleBMJ open2021
Family refusal of eye tissue donation from potential solid organ donors: a retrospective analysis of summary and free-text data from the UK National Health Service Blood and Transplant Services (NHS-BT) National Referral Centre (1 April 2014 to 31 March 2017).
Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Why take the eye? A systematic review of corneal retrieval methods and donor consent: implications for the UK.BMJ open ophthalmology · 2025Pooled it
- Meeting the Need for Corneal Transplantation in Syria: Islamic Perspectives and Barriers to Building a Sustainable Eye Banking System.Eye banking and corneal transplantation · 2025Article
- Rates of eye donation amongst multi-organ donors over a decade (2013-2022) in new Zealand/Aotearoa.Scientific reports · 2025Article
- Modeling sacsin depletion in Danio Rerio offers new insight on retinal defects in ARSACS.Neurobiology of disease · 2025Article
- Eye donation in hospice and hospital palliative care settings: perceptions, practice, and service development needs - findings from a national survey.BMC palliative care · 2023Article
- The potential for eye donation from hospice and palliative care clinical settings in England: a retrospective case note review of deceased patients' records.Cell and tissue banking · 2023Article
- Socio-economic factors are the main factors affecting organ donation.Revista da Associacao Medica Brasileira (1992) · 2023Article
- Barriers and Facilitators to Eye Donation in Hospice and Palliative Care Settings: A Scoping Review.Palliative medicine reports · 2021Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesLong-standing undersupply of eye tissue exists both in the UK and globally, and the UK National Health Service Blood and Transplant Service (NHSBT) has called for further research exploring barriers to eye donation. This study aims to: (1) describe reported reasons for non-donation of eye tissue from solid organ donors in the UK between 1 April 2014 and 31 March 2017 and (2) discuss these findings with respect to existing theories relating to non-donation of eyes by family members.
designSecondary analysis of a national primary data set of recorded reasons for non-donation of eyes from 2790 potential solid organ donors. Data analysis including descriptive statistics and qualitative content analysis of free-text data for 126 recorded cases of family decline of eye donation.
settingNational data set covering solid organ donation (secondary care).
participants2790 potential organ donors were assessed for eye donation eligibility between 1 April 2014 and 31 March 2017.
resultsReasons for non-retrieval of eyes were recorded as: family wishes (n=1339, 48% of total cases); medical reasons (n=841, 30%); deceased wishes (n=180, 7%). In >50% of recorded cases, reasons for non-donation were based on family's knowledge of the deceased wishes, their perception of the deceased wishes and specific concerns regarding processes or effects of eye donation (for the deceased body). Findings are discussed with respect to the existing theoretical perspectives.
conclusionEye donation involves distinct psychological and sociocultural factors for families and HCPs that have not been fully explored in research or integrated into service design. We propose areas for future research and service development including potential of only retrieving corneal discs as opposed to full eyes to reduce disfigurement concerns; public education regarding donation processes; exploration of how request processes potentially influence acceptance of eye donation; procedures for assessment of familial responses to information provided during consent conversations.
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