Evidence map›Paper›PMID 34515871›Full record

ReviewSchmerz (Berlin, Germany)2022

[Challenges in pain assessment and management among individuals with intellectual and developmental disabilities : German version].

Chantel C Barney, Randi D Andersen, Ruth Defrin, Lara M Genik, Brian E McGuire, Frank J Symons

Abstract readReview
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In one paragraph

Review in Schmerz (Berlin, Germany), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact, top 100% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 5 institutions in 5 countries.

Chantel C BarneyGillette Children's Specialty Healthcare, 200 University Ave E., 55101, Saint Paul, MN, USA. cbarney@gillettechildrens.com.
Randi D AndersenDepartment of Research, Telemark Hospital Trust, Skien, Norwegen.
Ruth DefrinDepartment of Physical Therapy, School of Health Professions, Sackler Faculty of Medicine & Sagol School of Neuroscience, Tel-Aviv University, Tel-Aviv, Israel.
Lara M GenikDepartment of Psychology, University of Guelph, Guelph, ON, Kanada.
Brian E McGuireSchool of Psychology and Centre for Pain Research, National University of Ireland, Galway, Irland.
Frank J SymonsDepartment of Educational Psychology, University of Minnesota, Minneapolis, MN, USA.
Minnesota Department of Education · USOllscoil na Gaillimhe – University of Galway · IETel Aviv University · ILTelemark Hospital · NOUniversity of Guelph · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionIntellectual and developmental disabilities (IDD) include conditions associated with physical, learning, language, behavioural, and/or intellectual impairment. Pain is a common and debilitating secondary condition compromising functional abilities and quality of life.

objectivesThis article addresses scientific and clinical challenges in pain assessment and management in individuals with severe IDD.

methodsThis Clinical Update aligns with the 2019 IASP Global Year Against Pain in the Vulnerable and selectively reviews recurring issues as well as the best available evidence and practice.

resultsThe past decade of pain research has involved the development of standardized assessment tools appropriate for individuals with severe IDD; however, there is little empirical evidence that pain is being better assessed or managed clinically. There is limited evidence available to inform effective pain management practices; therefore, treatment approaches are largely empiric and highly variable. This is problematic because individuals with IDD are at risk of developing drug-related side effects, and treatment approaches effective for other populations may exacerbate pain in IDD populations. Scientifically, we are especially challenged by biases in self-reported and proxy-reported pain scores, identifying valid outcome measures for treatment trials, being able to adequately power studies due to small sample sizes, and our inability to easily explore the underlying pain mechanisms due to compromised ability to self-report.

conclusionDespite the critical challenges, new developments in research and knowledge translation activities in pain and IDD continue to emerge, and there are ongoing international collaborations.

Indexed as

Developmental DisabilitiesIntellectual DisabilityChildHumansLanguagePain MeasurementQuality of LifeCerebral palsyCognitive impairmentDiscomfortIntellectual and developmental disabilitiesPainQuantitative sensory testing

Identifiers

PMID34515871
OpenAlexW3200412825

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.