ArticleJournal of cancer survivorship : research and practice2022
Patient activation and treatment decision-making in the context of cancer: examining the contribution of informal caregivers' involvement.
Article in Journal of cancer survivorship : research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Effects of Decision Aids on Decision Knowledge, Conflict, and Satisfaction Among Patients With Cancer: A Systematic Review and Meta-Analysis.Journal of nursing management · 2026Pooled it
- Pooled it
- Factors influencing patient activation among patients with cancer: A scoping review.Asia-Pacific journal of oncology nursing · 2026Review
- A Qualitative Exploration of Patient Activation Among Hispanic Breast Cancer Patients.Research square · 2026Article
- Coping with primary brain tumors together: a scoping review of dyadic psychosocial interventions.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Survivorship preparedness and activation among survivors of lymphoma.Journal of cancer survivorship : research and practice · 2026Article
- Triad of agency, mood, and meaning: A nursing perspective on patient activation, depression, and quality of life in older adults receiving palliative oncology care.Palliative & supportive care · 2026Article
- A latent profile analysis of patient activation in postoperative breast cancer patients: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- The caregiver clinical communication process model: advancing the model to support spousal cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Activation and Preparedness for Survivorship Care Among Survivors of Oral and Oropharyngeal Cancers.Head & neck · 2025Article
- Latent Profile Analysis for Patient Activation in Patients with Essential Hypertension.Patient preference and adherence · 2025Article
- Facilitators and barriers to survivorship support access: a qualitative study of rectal cancer survivors' experiences in Texas.BMJ open · 2024Article
- A Systematic Review of the Reliability and Validity of the Patient Activation Measure Tool.Healthcare (Basel, Switzerland) · 2024Review
- Assessing the Impact of Family Caregivers in Clinical Encounter Participation on Patient Activation in the Metastatic Breast Cancer Setting.Research square · 2023Article
- Article
- Psychosocial Experiences, Challenges, and Recommendations for Care Delivery among Partners of Breast Cancer Survivors: A Qualitative Study.International journal of environmental research and public health · 2023Article
- A Model of Social Support for a Patient-Informal Caregiver Dyad.BioMed research international · 2022Article
- Examining the Pathoplastic Moderating Role of Education on the Association between Depressive Mood and Self-Rated Health among Cancer Survivors: A Population-Based Study.Current oncology (Toronto, Ont.) · 2021Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe present work investigated the relationship between patient activation, treatment decision-making, and adherence to the prescribed treatment regimen. Given the role of informal caregivers in patient-reported outcomes, it was additionally assessed whether caregiver involvement acted as a moderator of this relationship.
methodsSurvey data collected from 504 cancer survivors were utilized. Structural equation modeling (SEM) controlling for covariates was used to examine the relationship between patient activation measure (PAM), caregiver involvement, and the identified outcomes. Moderator analysis was conducted using multiple group SEM.
resultsPatient activation was significantly associated with treatment planning being reflective of survivors' goals and values (p < 0.001); adherence to treatment (p = 0.011); and satisfaction (p < 0.001). Caregiver's involvement significantly moderated the association between activation and adherence to treatment.
conclusionsPatient activation was positively associated with all three selected outcomes. However, for cancer survivors reporting low rates of caregiver's involvement, patient activation was not associated with treatment adherence. Research is needed to test and deliver self-management interventions inclusive of informal caregivers. IMPLICATIONS FOR CANCER SURVIVORS: Findings supported the need not only to monitor and sustain patient activation across the cancer continuum, but also to assume a dyadic perspective when designing self-management interventions in cancer survivorship.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.