Evidence map›Paper›PMID 34505207›Full record

ArticleJournal of cancer survivorship : research and practice2022

A qualitative study of online information-seeking preferences among cancer survivors.

Alexandra Budenz, Alix G Sleight, William M P Klein

Abstract read
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed.

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  5. Information Seeking Behaviors and Preferences of Cancer Survivors: A Cross-sectional Study in Shanghai, China.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
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  11. Cancer prognosis information-seeking among survivors and caregivers: findings from the National Cancer Institute's Cancer Information Service.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
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  14. "The Materials Didn't Really Seem to Apply to Me": A Focus-Group Study on Young Women's Needs and Perspectives on Breast Cancer Educational Material.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Alexandra BudenzTobacco Control Research Branch, Behavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, 9609 Medical Center Dr, Rockville, MD, 20850, USA. Alexandra.budenz@nih.gov.
Alix G SleightDepartment of Physical Medicine and Rehabilitation, Cedars-Sinai, 8700 Beverly Blvd., NT 7217, Los Angeles, CA, 90048, USA.
William M P KleinOffice of the Associate Director, Behavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, 9609 Medical Center Dr, Rockville, MD, 20850, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeAs the cancer survivor population increases, diminished health care provider capacity will place more responsibility on survivors to obtain health information. Many survivors search for cancer information online, yet there is a dearth of research on how survivors obtain and engage with this information. This study examined cancer survivors' information-seeking behaviors and perceptions during a self-guided online search task.

methodsTen adult cancer survivors (largely breast and thyroid) completed a task in which they searched for online cancer-related information of their choice. Participants were asked to verbally narrate the procedural aspects of the task and provide real-time responses to the search results and experiences related to the task. Transcripts were analyzed using a qualitative descriptive approach, and codes and themes were examined and interpreted.

resultsParticipants searched primarily for information specific to their cancer type and stage, seeking personalized information about risk factors, prognosis, and treatments. Additionally, participants reported having to engage in excessive navigation to find relevant cancer information, citing aesthetic, usability, and credibility features of the websites that they considered barriers to obtaining this information.

conclusionsSurvivors' online health information needs require streamlined cancer information resources that are disaggregated by cancer type, stage, and treatment course and located on websites with aesthetic and usability features that facilitate expedient searches for personally relevant cancer information. IMPLICATIONS FOR CANCER SURVIVORS: This study provides useful perspectives of cancer survivors that may inform the development of online cancer resources to better serve this population.

Indexed as

Cancer SurvivorsNeoplasmsAdultHumansInformation Seeking BehaviorQualitative ResearchSurvivorsCancerStageSurvivor

Identifiers

PMID34505207
PMCPMC8428952

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.