ArticleOrphanet journal of rare diseases2021
Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender.
Article in Orphanet journal of rare diseases, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.
- Assessing Psychological Harms on Parents and Primary Caregivers of Children Living with a Rare Disease: A Systematic Review of the Scope and Validity of Surveys Utilized.Clinical child and family psychology review · 2025Pooled it
- Health-related quality of life and family functioning in parents of children with Barth syndrome: an application of the Double ABCX model.Orphanet journal of rare diseases · 2025Article
- Exploring the factors contributing to parent stress symptoms during the COVID-19 pandemic in Europe: An ABC-X model approach.Family process · 2025Article
- The Family Stress Model in families of children with rare diseases: a cross-sectional multilevel path analysis for understanding family dynamics.Frontiers in public health · 2025Observational
- Article
- Parental mental health and child anxiety during the COVID-19 pandemic in Latin America.The Journal of social issues · 2022Article
- Factors of family impact in a Swedish-German cohort of children born with esophageal atresia.Orphanet journal of rare diseases · 2022Article
- Social Support and Family Resilience Among Young and Middle-aged Patients with Coronary Heart Disease: The Mediating Role of Sense of Coherence and Coping Styles.The Journal of cardiovascular nursingArticle
Corrections and comments
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPrevious research has supported the utility of the Double ABCX model of family adaptation for parents in various diseases. Nonetheless, it remains unclear how raising a child with rare congenital surgical diseases impacts the mental health of both mothers and fathers.
methodsThe potential predictors of maternal and paternal mental health in a German sample of 210 parents of children with rare congenital surgical diseases were investigated. Parents were investigated cross-sectionally utilizing standardized psychometric questionnaires that assessed factors attributed to parental adaptation within the Double ABCX model.
resultsStressor pile-up, family functioning, perceived stress, and mental health were positively associated with mothers and fathers. However, further analyses revealed that family functioning, social support, and perceived stress fully mediated the positive association between stressor pile-up and mental health in mothers, but not fathers.
conclusionOur findings suggest that parental adaptation to a rare congenital surgical disease in their children may be improved by increased intra- and extrafamilial resources and decreased perceived family-related stress in mothers, but not fathers. Our results may help to identify gender-specific factors that may guide clinicians and future interventions.
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