ArticleBMC pediatrics2021
The diagnostic trajectory in autism and intellectual disability in Quebec: pathways and parents' perspective.
Article in BMC pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Systematic review of measures and interventions for caregiver adjustment to child autism diagnosis.Autism : the international journal of research and practice · 2026Pooled it
- Parent coaching program for children with emerging developmental disabilities while on a waitlist for services: cost analysis from a family payer perspective.BMC pediatrics · 2026Trial
- The characteristics of users of an online screening tool for children and adolescents with intellectual disability and of those being screened.Journal of intellectual disabilities : JOID · 2026Article
- How can we improve the timeliness and quality of diagnostic assessment for children with possible autism? Qualitative findings and recommendations from a Realist Evaluation of Autism Service delivery in the United Kingdom.Autism : the international journal of research and practice · 2026Article
- Parents' Emotional Journey Throughout Their Participation in a Well-Being Support Group Intervention.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Waiting Times and Influencing Factors in Children and Adults Undergoing Assessment for Autism, ADHD, and Other Neurodevelopmental Differences.Autism research : official journal of the International Society for Autism Research · 2025Article
- Delayed diagnosis in children with autism spectrum disorder or intellectual disability.Dementia & neuropsychologia · 2025Article
- Exploring neurodevelopmental concerns: insights from a public neuropediatric learning disabilities multiprofessional outpatient facility in Brazil.Frontiers in psychology · 2025Article
- Early positive approaches to support for family carers of young children with developmental disabilities: adaptation and piloting in Quebec public services.Frontiers in rehabilitation sciences · 2025Article
- Autism, Stigma, and South Asian Immigrant Families in Canada.International journal of environmental research and public health · 2024Article
- A new model for the diagnostic assessment services trajectory for neurodevelopmental conditions.Frontiers in rehabilitation sciences · 2024Article
- The Diagnostic Period for Autism: Risk and Protective Factors for Family Quality of Life in Early Childhood.Journal of autism and developmental disorders · 2023Article
- Symptom Severity, Internalized and Externalized Behavioral and Emotional Problems: Links with Parenting Stress in Mothers of Children Recently Diagnosed with Autism.Journal of autism and developmental disorders · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThis paper aimed to describe the diagnostic service trajectory of families of children with autism or intellectual disability in the province of Québec and identify predictors of parents' perceptions of its quality.
methodsThe Evaluation of the services Trajectory in Autism by Parents instrument was completed by 259 parents at an assessment clinic. Children's clinical records were also examined.
resultsOn average 26 months elapsed between their first concerns and their child's diagnosis, a period during which few (25%) received support. Parents' evaluations were generally positive but were lower for the accessibility of the pre-assessment phase and the flexibility of the assessment process. Longer delays and a greater number of professionals consulted were associated with lower quality ratings. Some language-, immigration status-, and income-related differences in families' appraisals were noted.
conclusionThe diagnostic trajectory for neurodevelopmental disorders within public services in Québec presents some efficiency and accessibility challenges. Possible improvements are proposed to facilitate screening and to support families throughout this phase of their trajectory.
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