Evidence map›Paper›PMID 34501839›Full record

ArticleInternational journal of environmental research and public health2021

Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence.

Katherine M Boydell, Anne Honey, Helen Glover, Katherine Gill, Barbara Tooth, Francesca Coniglio, Monique Hines, Leonie Dunn, Justin Newton Scanlan

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Katherine M BoydellBlack Dog Institute, Sydney, NSW 2034, Australia.
Anne HoneySchool of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia.ORCID 0000-0001-5918-0454
Helen GloverEnlightened Consultants, Redland Bay, QLD 4165, Australia.
Katherine GillConsumer-Led Research Network, University of Sydney, Sydney, NSW 2006, Australia.
Barbara ToothThe Mental Health Services (TheMHS) Network, Balmain, NSW 2000, Australia.
Francesca ConiglioPrivate Practitioner, Sydney, NSW 2000, Australia.
Monique HinesSchool of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia.
Leonie DunnSouth Eastern Sydney Local Health District, Sydney, NSW 2010, Australia.
Justin Newton ScanlanSchool of Health Sciences, University of Sydney, Sydney, NSW 2006, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Mental health lived-experience research illuminates the perspectives and experiences of people who live with mental illness. However, little is known about how useful people with lived experience of mental illness/distress might find lived-experience research, nor what the best formats are to bring it to their attention. This paper describes the STELLER study (Supporting the Translation into Everyday Life of Lived-Experience Research), which explores the translation of lived-experience research in the lives of people living with mental illness. Our aim was to use a design thinking approach to develop a range of user-friendly formats to disseminate lived-experience research. A staged design thinking approach was used to develop a translation strategy for lived-experience research. We explored empathy via consumer consultation to understand their perspectives on lived-experience research, refined the design aim, research questions and generated ideas with consumers and mental health professionals, identified the evidence based on lived experience-authored journal articles, worked with design students and peer workers to create a suite of resources and developed prototypes tailored to individual settings and clients. Participatory design thinking strategies are essential to identify the best ways to translate evidence-based lived-experience research via accessible, lay-friendly resources targeted to individuals impacted by mental illness. This study is the first to investigate the feasibility and usefulness of bringing the findings of lived-experience research to individuals impacted by mental illness/distress. It provides evidence about a potentially important source of information that can be used to facilitate their recovery.

Indexed as

Mental DisordersTranslational Research, BiomedicalEmpathyHumansMental HealthPeer Groupco-designdesign thinkingknowledge translationlived-experience researchmental health recovery

Identifiers

PMID34501839
PMCPMC8431623

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.