ArticleInternational journal of environmental research and public health2021
Patients' Access to Their Psychiatric Notes: Current Policies and Practices in Sweden.
Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- Health Care Professionals' Perspectives on Implementing Patient-Accessible Electronic Health Records in Primary Care: Qualitative Study.JMIR medical informatics · 2025Article
- Patient-Accessible Electronic Health Records and Information Practices in Mental Health Care Contexts: Scoping Review.Journal of medical Internet research · 2025Article
- Perceptions of electronic health records by ethnically diverse groups in mental health: A systematic literature review.Global mental health (Cambridge, England) · 2025Review
- Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden.BMC psychiatry · 2024Article
- A Nordic Perspective on Patient Online Record Access and the European Health Data Space.Journal of medical Internet research · 2024Article
- Psychiatrists' perceptions of conditions and consequences associated with the implementation of open notes: qualitative investigation.BMC psychiatry · 2024Article
- Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden.BMJ paediatrics open · 2024Article
- Experiences of Patients With Mental Health Issues Having Web-Based Access to Their Records: National Patient Survey.JMIR mental health · 2024Article
- Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden.Journal of medical Internet research · 2023Article
- Changes in Documentation Due to Patient Access to Electronic Health Records: Protocol for a Scoping Review.JMIR research protocols · 2023Article
- General Practices' Experiences With Patients' Web-Based Access to Medical Records: Survey Study.Journal of medical Internet research · 2023Article
- Usability of the Swedish Accessible Electronic Health Record: Qualitative Survey Study.JMIR human factors · 2022Article
- Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review.JMIR mental health · 2021Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patients' access to electronic health records (EHRs) is debated worldwide, and access to psychiatry records is even more criticized. There is a nationwide service in Sweden which offers all citizens the opportunity to read their EHR, including clinical notes. This study aims to explore Swedish national and local policy regulations regarding patients' access to their psychiatric notes and describe to what extent patients currently are offered access to them. The rationale behind the study is that current policies and current practices may differ between the 21 self-governing regions, although there is a national regulation. We gathered web-based information from policy documents and regulations from each region's website. We also conducted key stakeholder interviews with respondents from the regions and cross-regional private care providers, using a qualitative approach. The results show that 17 of 21 regions share psychiatric notes with patients, where forensic psychiatric care was the most excluded psychiatric care setting. All private care providers reported that they mainly follow the regions' guidelines. Our findings show that regional differences concerning sharing psychiatric notes persist, despite Swedish regulations and a national policy that stipulates equal care for everyone. The differences, however, appear to have decreased over time, and we report evidence that the regions are moving toward increased transparency for psychiatry patients.
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