ArticlePsycho-oncology2022
Experiences and needs of people with haematological cancers during the COVID-19 pandemic: A qualitative study.
Article in Psycho-oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 38 citations in OpenAlex.
- The psychosocial and emotional experiences of cancer patients during the COVID-19 pandemic: A systematic review.Seminars in oncology · 2022Pooled it
- The Work/Care Interface and Parents' Mid-Pandemic Mental Health: Inequalities at the Intersection of Gender and High-Risk Household Status.Society and mental health · 2025Article
- The psychological effects of protective isolation on haematological stem cell transplant patients: an integrative, descriptive review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Review
- Management of pain in cancer patients- lessons from practices during the COVID-19: a qualitative study of cancer care providers' perspectives.BMC health services research · 2024Article
- Impact of financial toxicity on adults with cancer during the COVID-19 pandemic: an integrative review.Revista brasileira de enfermagem · 2024Review
- Article
- The Role of Telemedicine for Psychological Support for Oncological Patients Who Have Received Radiotherapy.Current oncology (Toronto, Ont.) · 2023Article
- The experience of patients with lung cancer during the COVID-19 pandemic and its importance for post-pandemic outpatient cancer care planning: A cross sectional study exploring the roles of age and frailty.Journal of geriatric oncology · 2023Article
- A qualitative study about colorectal cancer patients and spousal caregivers' experience and needs during COVID-19: implications for self-efficacy intervention.Asia-Pacific journal of oncology nursing · 2023Article
- Impact on mental health, disease management, and socioeconomic modifications in hematological patients during the COVID-19 pandemic in Italy.Therapeutic advances in hematology · 2023Article
- Factors associated with changes in healthy lifestyle behaviors among hematological cancer patients during the COVID-19 pandemic.Frontiers in psychology · 2023Article
- Impact of COVID-19 on older adults with cancer and their caregivers' cancer treatment experiences study: The ICE-OLD study.PloS one · 2023Article
- Experiences of cancer care in COVID-19: A longitudinal qualitative study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2022Article
- Perspectives of older women with early breast cancer on telemedicine during post-primary treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Patients' experiences of the COVID-19 pandemic and the change to telephone consultations in cancer care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Article
- Experiences and needs of people with haematological cancers during the COVID-19 pandemic: A qualitative study.Psycho-oncology · 2022Article
- Perceptions and practices of people with a total laryngectomy during COVID-19 pandemic: A mixed methods analysis.American journal of otolaryngologyArticle
- Article
Corrections and comments
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Authors and funding
8 authors at 5 institutions in 2 countries.
Funding
Abstract
objectiveHaematological cancer patients are particularly vulnerable to the effects of COVID-19. In addition to being immunocompromised, pandemic-related travel restrictions have impacted access to treatments and overseas stem cell donations for patients requiring transplantation. Given this vulnerability, people with haematological cancers are at risk of experiencing heightened distress during the pandemic. This study aimed to explore haematological cancer patients' experiences and needs.
methodsTwenty-four Australian haematological cancer patients completed semi-structured interviews exploring their concerns and worries during the pandemic, impact of pandemic on management of disease, access to information and support, lifestyle changes, and attitudes towards emerging models of healthcare during the pandemic. Interview transcripts were thematically analysed.
resultsFour themes reflecting the experiences of haematological cancer patients during the pandemic were identified: 'Fears about contracting COVID-19' (behaviour changes to protect health, impact on daily routine and habits, annoyance at dismissive attitude of others toward COVID-19); 'Reduced sense of connection and support' (reduced social support and access to external support services); 'New challenges' (increased financial hardship, worsened health), and; 'Underlying system and communication issues' (access to trusted information, satisfaction/dissatisfaction with care, navigating telehealth). Participants expressed a need for improved access to support services and trusted information.
conclusionsThe findings emphasise the additional challenges experienced by haematological cancer patients during the COVID-19 pandemic and their impact on daily life. Results point to the importance of validation of increased distress during periods of uncertainty; reinforcing recommendations about high-quality sources of information; and facilitating access to support services when face-to-face care is limited.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.