ArticleJournal of autism and developmental disorders2022
Brief Report: The Experiences of Families of Children with an Autism Spectrum Disorder When Seeking Patient-and Family-Centered Care.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- Evaluating the Holistic Value of Family-Centred Care in Paediatric Intensive Care Units: A Mixed Methods Study.Nursing open · 2026Article
- A "Whole Child Approach": Parent Experiences with Acute Care Hospitalizations for Children with Autism Spectrum Disorder and Behavioral Health Needs.Journal of autism and developmental disorders · 2026Article
- Effectiveness of Multi-Level Implementation Strategies on Caregiver-Identified "Top Problems:" Secondary Outcomes of a Hybrid Trial of Two Autism Interventions.Evidence-based practice in child and adolescent mental health · 2025Article
- Characterizing Mental Health Symptoms and Caregiver Priorities for Autistic Children Receiving Publicly-Funded Mental Health Services: A Latent Class Analysis.Evidence-based practice in child and adolescent mental health · 2025Article
- Exploring the Impact of Insurance Gaps on Healthcare Burden for Autistic Children.Journal of autism and developmental disorders · 2025Article
- Enhancing autism care through remote support: A family-centered approach.World journal of psychiatry · 2025Article
- Autism Comes to the Pediatric Hospital: Perspectives of Child Life Specialists.Journal of autism and developmental disorders · 2024Article
- "We were the best people to do the job": Caregivers' reported outcomes of a virtual caregiver-delivered program for autistic preschoolers.Autism & developmental language impairmentsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patient-and family-centered care (PFCC) is a partnership among healthcare professionals, patients, and families that is grounded in mutual respect and is an approach that impacts delivery of care, decision-making, and information sharing. PFCC should be implemented for all, including individuals with Autism Spectrum Disorders (ASD), who experience adverse medical encounters despite increased prevalence and healthcare utilization. Insights into the experiences of families during medical experiences can inform clinical practice by increasing healthcare professionals' understanding of the population. Using a mixed-methods approach, the perspectives of 40 families were analyzed. The themes include barriers and opportunities to improve upon the delivery of PFCC, which help to advance healthcare interactions and inform solution-based initiatives to facilitate medical visits that may benefit all patients.
Indexed as
Identifiers
34499274What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.