Evidence map›Paper›PMID 34497082›Full record

ArticleBMJ open2021

Cross-sectional study evaluating burden and depressive symptoms in family carers of persons with age-related macular degeneration in Australia.

Ivan Jin, Diana Tang, Jessica Gengaroli, Kathryn Nicholson Perry, George Burlutsky, Ashley Craig, Gerald Liew, Paul Mitchell, Bamini Gopinath

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
4.2field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 15 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 1 country.

Ivan JinCentre for Vision Research, University of Sydney, Sydney, New South Wales, Australia.
Diana TangMacquarie University Hearing, Macquarie University, Sydney, New South Wales, Australia.ORCID 0000-0003-2007-9054
Jessica GengaroliDiscipline of Psychological Science, Australian College of Applied Psychology, Sydney, New South Wales, Australia.
Kathryn Nicholson PerryDiscipline of Psychological Science, Australian College of Applied Psychology, Sydney, New South Wales, Australia.
George BurlutskyMacquarie University Hearing, Macquarie University, Sydney, New South Wales, Australia.
Ashley CraigNorthern Clinical School, University of Sydney, St Leonards, New South Wales, Australia.ORCID 0000-0001-7647-7604
Gerald LiewCentre for Vision Research, University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0001-7422-0012
Paul MitchellCentre for Vision Research, University of Sydney, Sydney, New South Wales, Australia.
Bamini GopinathMacquarie University Hearing, Macquarie University, Sydney, New South Wales, Australia bamini.gopinath@mq.edu.au.ORCID 0000-0003-3573-359X
The University of Sydney · AUMacquarie University · AUAustralian College of Applied Psychology · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesWe aimed to analyse the degree of carer burden and depressive symptoms in family carers of persons with age-related macular degeneration (AMD) and explore the factors independently associated with carer burden and depressive symptoms.

methodsCross-sectional study using self-administered and interviewer-administered surveys, involving 96 family carer-care recipient pairs. Participants were identified from tertiary ophthalmology clinics in Sydney, Australia, as well as the Macular Disease Foundation of Australia database. Logistic regression, Pearson and Spearman correlation analyses were used to investigate associations of explanatory factors (family caregiving experience, carer fatigue, carer quality of life and care-recipient level of dependency) with study outcomes-carer burden and depressive symptoms.

resultsOver one in two family carers reported experiencing mild or moderate-severe burden. More than one in five and more than one in three family carers experienced depressive symptoms and substantial fatigue, respectively. High level of care-recipient dependency was associated with greater odds of moderate-severe and mild carer burden, multivariable-adjusted OR 8.42 (95% CI 1.88 to 37.60) and OR 4.26 (95% CI 1.35 to 13.43), respectively. High levels of fatigue were associated with threefold greater odds of the carer experiencing depressive symptoms, multivariable-adjusted OR 3.47 (95% CI 1.00 to 12.05).

conclusionsA substantial degree of morbidity is observed in family carers during the caregiving experience for patients with AMD. Level of dependency on the family carer and fatigue were independently associated with family carer burden and depressive symptoms. TRIAL REGISTRATION NUMBER: The trial registration number is ACTRN12616001461482. The results presented in this paper are Pre-results stage.

Indexed as

CaregiversMacular DegenerationCross-Sectional StudiesDepressionHumansQuality of Lifeepidemiologymedical retinamental healthpublic health

Identifiers

PMID34497082
PMCPMC8438959
OpenAlexW3197832884

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.