ArticleBMJ open diabetes research & care2021
Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness.
Article in BMJ open diabetes research & care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 29 citations in OpenAlex.
- Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Structured patient and public involvement programme development in low- and middle-income country health research: a scoping review of evidence gaps and a framework for future practice.Research involvement and engagement · 2026Review
- "Cold Hard Cash": The Value of Direct Unconditional Compensation for People With Lived Expertise of Homelessness.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Nonmedical Factors That Influence Diabetes Complications and Multilevel Strategies to Reduce Disparities and Improve Outcomes in the U.S.Diabetes care · 2026Article
- Co-designing interventions to increase food access: perceptions and experiences of community member end-users.Research involvement and engagement · 2025Article
- Complementary medicine among individuals experiencing homelessness in Switzerland: a quantitative and qualitative descriptive study.BMC complementary medicine and therapies · 2025Article
- Exploring patient perspectives on the impact of resuming cost sharing: a qualitative analysis.Trials · 2024Article
- A stakeholder co-design approach to designing a dental service for adults experiencing homelessness.Frontiers in oral health · 2024Article
- Significance of fostering the mental health of patients with diabetes through critical time intervention.World journal of clinical cases · 2023Article
- Lessons learned from a virtual Community-Based Participatory Research project: prioritizing needs of people who have diabetes and experiences of homelessness to co-design a participatory action project.Research involvement and engagement · 2023Article
- Integrated approach to cardiovascular disease in people experiencing homelessness: a qualitative study.Open heart · 2023Article
- Rethinking patient-oriented research.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2022Article
- Process evaluation of an academic-community-government partnership to reduce liver diseases attributable to hepatitis B virus.BMC health services research · 2022Article
- Moving the needle on health inequities: principles and tactics for effective cross-sector population health networks.Current opinion in pediatrics · 2022Review
- Pharmacists' role in diabetes management for persons with lived experience of homelessness in Canada: A qualitative study.Frontiers in clinical diabetes and healthcare · 2022Article
- Article
- Using concept mapping to prioritize barriers to diabetes care and self-management for those who experience homelessness.International journal for equity in health · 2021Article
- Lessons learned from conducting a community-based, nurse-led HIV prevention trial with youth experiencing homelessness: Pivots and pitfalls.Public health nursing (Boston, Mass.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionParticipatory research is a study method that engages patients in research programs, ideally from study design through to dissemination. It is not commonly used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a participatory research project and to highlight the experiences of both patient co-researchers and academic researchers. RESEARCH DESIGN AND
methodsWe recruited people with lived experience of homelessness (PWLEH) and diabetes in Toronto, Canada to become patient co-researchers. They were asked to commit to attending biweekly meetings. We undertook two major research projects: concept mapping to choose a research focus; and photovoice to explore accessing healthy food while homeless. We used a convergent mixed-methods design to evaluate their experience.
resultsA diverse group of eight PWLEH had an average attendance of 82% over 21 meetings-despite this success, we encountered a number of challenges of conducting this research: funding, ethics approval and recruitment were particularly difficult. Group members reported that participation improved their ability to self-advocate in their diabetes care and provided them with tangible skills and social benefits. Group members stated that they valued being involved in all aspects of the research, in particular knowledge translation activities, including advocating for nutritious food at shelters; presenting to stakeholders; and meeting with policymakers.
conclusionsThe use of participatory research methods enables academic researchers to support community members in pursuing research that is pertinent to them and which has a positive impact. In our study, co-researchers contributed in meaningful ways and also valued the experience.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.