ArticleBritish dental journal2021
Patient-reported outcome measure for children and young people with amelogenesis imperfecta.
Article in British dental journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 15 citations in OpenAlex.
- Evaluating a condition-specific PROM for amelogenesis imperfecta in children and young people: insights from patients and clinicians.European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry · 2026Article
- A UK-based consensus on clinical decision flowcharts for managing childhood amelogenesis imperfecta in the permanent dentition.European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry · 2026Article
- Resin Infiltration for the Management of Hypomature Amelogenesis Imperfecta: A Case Report.Case reports in dentistry · 2026Article
- Understanding the Real Needs and Expectations of French Patients with Amelogenesis Imperfecta Through Facebook Content: A Qualitative Thematic Analysis.Healthcare (Basel, Switzerland) · 2025Article
- Establishment of a clinical network for children with amelogenesis imperfecta and dentinogenesis imperfecta in the UK: 4-year experience.European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry · 2024Article
- Oral health-related quality of life in Northland Māori children and adolescents with Polynesian amelogenesis imperfecta.Frontiers in dental medicine · 2024Article
- Article
- Classifying Children's Behaviour at the Dentist-What about 'Burnout'?Dentistry journal · 2023Article
- Patient-reported outcome measures for children and adolescents having dental bleaching in the UK.European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry · 2022Article
- PROMs in AI patients.British dental journal · 2022Article
- Amelogenesis imperfecta. case report.Revista cientifica odontologica (Universidad Cientifica del Sur)Article
Corrections and comments
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Authors and funding
7 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background Amelogenesis imperfecta (AI) is a genetic enamel defect that can affect both the primary and permanent dentition. It has a range of clinical phenotypes, and children and young people often present with challenging oral health needs. Patient-reported outcome measures (PROMs) can identify key patient concerns.Methods This was a multi-centre service evaluation across several specialist paediatric dentistry services in the UK. A PROM questionnaire was created with clinician and patient input, through peer review with the national AI Clinical Excellence Network, as well as piloting the PROM with ten children and young people with AI. The final PROM questionnaire was distributed to all patients with AI attending each unit between January and March 2020.Results Sixty children and young people (aged 5-17 years) across four specialist units participated, with 72% reporting that they 'often' or 'sometimes' experienced pain or sensitivity and 76% reporting that they 'often' or 'sometimes' felt unhappy with the way their teeth look. Of the patients who were post-treatment, 81% indicated that they were happy with their teeth, compared to just 41% of patients who were mid-treatment and 33% of patients who were pre-treatment.Conclusion Children and young people with AI experience a range of issues related to their function and psychosocial wellbeing. This simple PROM demonstrates the range of issues this group of patients face, and could be used to monitor an individual's progress to ensure that treatment is planned to address the patient's individual concerns and needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.