Evidence map›Paper›PMID 34487046›Full record

ArticleJournal of Alzheimer's disease : JAD2021

Dementia Caregivers' Experiences Engaging Supportive Services While Residing in Under-Resourced Areas.

Quinton D Cotton, Amy J H Kind, Alice J Kim, Laura M Block, Jochen René Thyrian, Jessica Monsees, Manish N Shah, Andrea Gilmore-Bykovskyi

Open access · greenAbstract read
In one paragraph

Article in Journal of Alzheimer's disease : JAD, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 2 pooled it
1.7field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 2 syntheses or guidelines pooled it, 12 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Review
  5. Promoting Adaptation to Caregiving Challenges: A Qualitative Study of Dementia Caregiving Specialists.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 2 countries.

Quinton D CottonDivision of Geriatrics and Gerontology, Department of Medicine, University of Wisconsin-Madison School of Medicine & Public Health, Madison, WI, USA.
Amy J H KindDivision of Geriatrics and Gerontology, Department of Medicine, University of Wisconsin-Madison School of Medicine & Public Health, Madison, WI, USA.
Alice J KimDivision of Geriatrics and Gerontology, Department of Medicine, University of Wisconsin-Madison School of Medicine & Public Health, Madison, WI, USA.
Laura M BlockUniversity of Wisconsin-Madison School of Nursing, Madison, WI, USA.
Jochen René ThyrianGerman Center for Neurodegenerative Diseases (DZNE) Site Rostock/Greifswald, Greifswald, Germany.
Jessica MonseesGerman Center for Neurodegenerative Diseases (DZNE) Site Rostock/Greifswald, Greifswald, Germany.
Manish N ShahUniversity of Wisconsin-Madison Institute for Clinical and Translational Research, Madison, WI, USA.
Andrea Gilmore-BykovskyiDivision of Geriatrics and Gerontology, Department of Medicine, University of Wisconsin-Madison School of Medicine & Public Health, Madison, WI, USA.
University of Wisconsin–Madison · USGerman Center for Neurodegenerative Diseases · DEUniversitätsmedizin Greifswald · DE

Funding

Wisconsin Alzheimer's Disease Research CenterP30AG062715 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI Sanjay Asthana · 2019 to 2026
$34.5M
Training & Education to Advance Minorities in Science (TEAM-Science)R25GM083252 · NIGMS · UNIVERSITY OF WISCONSIN-MADISON · PI BIRD, IAN M. · 2008 to 2021
$8.5M
White matter degeneration: biomarkers in preclinical Alzheimer's DiseaseR01AG037639 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI BENDLIN, BARBARA BRIGITTA · 2012 to 2023
$5.3M
Neighborhood Socioeconomic Contextual Disadvantage and Alzheimer's DiseaseRF1AG057784 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI BENDLIN, BARBARA BRIGITTA, KIND, AMY J. · 2017 to 2017
$3.8M
Neighborhood Socioeconomic Disadvantage and Medicare's 30-Day Rehospitalization Policy: Eliminating Rehospitalization Disparities by Informing Policy Design and ImplementationR01MD010243 · NIMHD · UNIVERSITY OF WISCONSIN-MADISON · PI KIND, AMY J. · 2015 to 2019
$2.8M
Novel Approaches to Identifying and Engaging Disadvantaged Patients with Alzheimer’s Disease (AD) in Clinical ResearchK76AG060005 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI GILMORE-BYKOVSKYI, ANDREA L · 2018 to 2022
$1.1M
Mentoring and Research in Patient-Oriented Geriatric Emergency CareK24AG054560 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI SHAH, MANISH N · 2017 to 2021
$955k
Defining a Culturally Tailored Crisis Intervention Model Targeting African American Dementia Caregivers in Socially Disadvantaged NeighborhoodsR36AG072033 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI COTTON, QUINTON · 2021 to 2022
$125k
NIA NIH HHS K24 AG054560NIA NIH HHS K76 AG060005NIA NIH HHS P30 AG062715NIA NIH HHS R01 AG037639NIA NIH HHS R36 AG072033NIA NIH HHS RF1 AG057784NIGMS NIH HHS R25 GM083252NIMHD NIH HHS R01 MD010243
6 · The paper itself

Abstract

backgroundFamily caregivers of people living with dementia benefit from supportive service use to address care needs associated with caregiving. Yet, research consistently demonstrates low rates of service use. Existing research has focused on barriers and facilitators to service use, with few studies examining the influence of caregivers' environmental context which often patterns social advantage and health services accessibility.

objectiveTo describe the perspectives of caregivers residing in socially disadvantaged areas have in regards to utilizing supportive services.

methodsTen informal caregivers residing in socially disadvantaged areas participated in in-depth interviews that were analyzed using thematic analysis.

resultsAcross all interviews, caregivers spontaneously described common precedents of service use (crisis or accumulation of unmet needs) and a distinct sequence of stages (seeking, initiating, and utilizing) surrounding service engagement. Major themes characterizing caregivers' experiences throughout service engagement highlight the varied influence of personal, familial, health, and social system-related factors. Findings demonstrate that caregivers may have different service needs as dementia progresses and that gerontological social work practice can facilitate service use.

conclusionWhile preliminary, these findings provide important insights into new domains that can be further examined in future research and intervention efforts to improve supportive service use in socially disadvantaged and underserved communities.

Indexed as

Health Services AccessibilityHealth Services Needs and DemandAgedCaregiversDementiaFemaleHumansInterviews as TopicMaleRural PopulationCaregivingdementiahealth disparitiessocial support

Identifiers

PMID34487046
PMCPMC8565358
OpenAlexW3196304975

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.