ArticleJournal of the American Medical Informatics Association : JAMIA2022
Transgender data collection in the electronic health record: Current concepts and issues.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 106 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
106 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Gender disparities in hospital admission patterns during the COVID-19 health emergency: a systematic review.BMC public health · 2026Pooled it
- Improving radiology information systems for inclusivity of transgender and gender-diverse patients: what are the problems and what are the solutions? A systematic review.Journal of medical radiation sciences · 2024Pooled it
- The trans care paradox: Mental health disparities among transgender and nonbinary patients in a trans-protective environment.The American psychologist · 2026Article
- Stigmatizing Language in Gender-Expansive Patient Records: Corpus Development, Disparity Analysis, and Natural Language Processing-Based Detection Study.Journal of medical Internet research · 2026Article
- Impact of gender-affirming hormone therapy on dry eye.Journal of clinical & translational endocrinology · 2026Article
- The Extent Of Gender/Sex Variables Included In Clinical Algorithms Across Medical Specialties.Health affairs (Project Hope) · 2026Article
- A scoping review of models to identify transgender patients in electronic health records.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- Collection and Use of Patient Demographic Information at US Dental School Clinics.Journal of dental education · 2026Article
- Fewer screens, greater needs: housing insecurity and healthcare costs for transgender patients in a safety-net system.Health affairs scholar · 2026Article
- Gender-Affirming identification documents are associated with positive health-related outcomes for transgender people in Bolivia.International journal of transgender health · 2026Article
- PrEP Prescription Lengths: Associations with Patient Retention, On-Time Renewal and Demographics.AIDS and behavior · 2026Article
- When algorithms infer gender: revisiting computational phenotyping with electronic health records data.Biology of sex differences · 2025Review
- Seeing clearly: why gender and sexual diversity must remain in eating disorder science.Eating and weight disorders : EWD · 2025Review
- Canadian cross-sectional survey of healthcare, social and community service providers' capacity to respond to sex trafficked persons.BMJ open · 2025Article
- Article
- Identifying Bias at Scale in Clinical Notes Using Large Language Models.Mayo Clinic proceedings. Digital health · 2025Article
- Sexual Orientation and Gender Identity Data in Oncology: Thematic Analysis From a National Qualitative Interview Study.Cancer medicine · 2025Article
- Evaluating the reliability of a revised two-step assessment of sex and gender in adolescents and adults.International journal of social research methodology · 2025Article
- Antitransgender Legislation and Needs of Transgender Floridians, 2018-2024.American journal of public health · 2025Article
- Ethical considerations for conducting research with transgender and gender-diverse patient registries: Balancing our need for evidence with patient vulnerability.Journal of public health research · 2025Article
46 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
17 authors.
Funding
Abstract
There are over 1 million transgender people living in the United States, and 33% report negative experiences with a healthcare provider, many of which are connected to data representation in electronic health records (EHRs). We present recommendations and common pitfalls involving sex- and gender-related data collection in EHRs. Our recommendations leverage the needs of patients, medical providers, and researchers to optimize both individual patient experiences and the efficacy and reproducibility of EHR population-based studies. We also briefly discuss adequate additions to the EHR considering name and pronoun usage. We add the disclaimer that these questions are more complex than commonly assumed. We conclude that collaborations between local transgender and gender-diverse persons and medical providers as well as open inclusion of transgender and gender-diverse individuals on terminology and standards boards is crucial to shifting the paradigm in transgender and gender-diverse health.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.