Evidence map›Paper›PMID 34485879›Full record

ArticleEClinicalMedicine2021

Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review.

Dona A Kiriella, Sumaiya Islam, Olutobi Oridota, Nancy Sohler, Coralie Dessenne, Carine de Beaufort, Guy Fagherazzi, Gloria A Aguayo

Registry-linked trialOpen access · goldAbstract readScoping Review
In one paragraph

Article in EClinicalMedicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05517772 (The Voice of Diabetes), which is not on this map. Cited by 27 papers.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed
5.5field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05517772 completednot on this mapstarted 2022, after this paper: background citation

The Voice of Diabetes: A Mixed-methods Study on the Needs of People With Type 1 Diabetes and Their Caregivers to Co-design a Voice-based Digital Health Solution to Support Diabetes Distress Management

TypeobservationalSponsorLuxembourg Institute of HealthRan2022 to 2023Enrolled12Conditionstype1diabetes, Diabetes Distress
3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 54 citations in OpenAlex.

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  12. We Are Not Alone: Examining the Impact of a Teen Diabetes Day Camp.Behavioral sciences (Basel, Switzerland) · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 2 countries.

Dona A KiriellaCommunity Health and Social Medicine Department, CUNY School of Medicine, New York, NY, United States.
Sumaiya IslamCommunity Health and Social Medicine Department, CUNY School of Medicine, New York, NY, United States.
Olutobi OridotaCommunity Health and Social Medicine Department, CUNY School of Medicine, New York, NY, United States.
Nancy SohlerCommunity Health and Social Medicine Department, CUNY School of Medicine, New York, NY, United States.
Coralie DessenneDepartment of Population Health, Luxembourg Institute of Health, Strassen, Luxembourg.
Carine de BeaufortDepartment of Paediatric Diabetes and Endocrinology, Paediatric Clinic, Hospital Centre of Luxembourg, Luxembourg, Luxembourg.
Guy FagherazziDeep Digital Phenotyping Research Unit, Department of Population Health, Luxembourg Institute of Health, Strassen, Luxembourg.
Gloria A AguayoDeep Digital Phenotyping Research Unit, Department of Population Health, Luxembourg Institute of Health, Strassen, Luxembourg.
CUNY School of Law · USLuxembourg Institute of Health · LUCentre Hospitalier de Luxembourg · LU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPsychological complications are frequent in type 1 diabetes (T1D) but they might be difficult to distinguish one from the other in clinical practice. Our objective was to study the distinguishing characteristics, overlaps and their use in the literature between three concepts of T1D: depression, diabetes distress (DD) and diabetes burnout (DB).

methodsA scoping review (PRISMA guidelines) performed in three databases (PubMed/MEDLINE, PsycInfo, Web of Science) with the keywords: T1D, depression, diabetes and burnout, from January 1990 to June 2021. We selected original studies with participants with T1D, which reported depression, DD, or DB. We extracted information about the concepts, their sub-concepts and screening tools.

findingsOf the 4763 studies identified, 201 studies were included in the study. Seventy-three percent, 57% and 45% of sub-concepts do not overlap in depression, DD, and DB, respectively. We observed overlap between depression (27%)/DD (27%) and between DD (20%)/DB (50%).

interpretationA number of sub-concepts distinguish depression and DD. Overlaps between concepts suggest that a more precise definition is still lacking. DB is still a relatively new concept and more research is needed to better understand how it can present itself differently, in order to personalize care in comparison to those having DD.

Indexed as

DepressionDiabetes burnoutDiabetes distressDiagnostic questionnairesExhaustionFear of hypoglicaemiaInsulin pumpPsychological burdenSelfmanagementType 1 diabetes

Identifiers

PMID34485879
PMCPMC8408521
OpenAlexW3196334477

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.