ArticleJournal of autism and developmental disorders2022
Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
42 citing papers in PubMed, 2 syntheses or guidelines pooled it, 77 citations in OpenAlex.
- Adverse outcomes for autistic people: an umbrella review of mental health, physical health, social and lifestyle domains.Frontiers in psychiatry · 2026Pooled it
- Who, when, where, and why: A systematic review of "late diagnosis" in autism.Autism research : official journal of the International Society for Autism Research · 2025Pooled it
- Considering Autism in Binge-Type Eating Disorders: Broadening Beyond an Anorexia Nervosa-Focused Model.Current psychiatry reports · 2026Review
- The Signposting Questionnaire for Autism-2 (SQ-A-2): using input from autistic adults to inform questionnaire development.Molecular autism · 2026Article
- The relationship between age of autism diagnosis and life satisfaction in adulthood.Autism : the international journal of research and practice · 2026Article
- "Our Existence as Whole Individuals Does Not Evaporate at Age 50": A Mixed Methods Study of Autistic Adults' Perspectives on Growing Older.Autism in adulthood · 2026Article
- Identification of autistic Māori in Aotearoa New Zealand: A national cross-sectional study.Autism : the international journal of research and practice · 2026Article
- Lived Experience, Family, and Clinician Perspectives on Barriers to Adult Autism Diagnosis and Post-Diagnostic Supports: A Mixed-Methods Systematic Review.Journal of developmental and physical disabilities · 2026Article
- Quality-of-life assessment in autistic adults with lower support needs: gaps and emerging challenges.Frontiers in psychiatry · 2026Review
- Gender differences in autism prevalence: origins of bias and its current scientific relevance.Frontiers in psychiatry · 2026Article
- Streamlining Adult Autism Diagnosis: High-yield DSM-5-TR Predictors and Sex-Based Considerations.Journal of autism and developmental disorders · 2025Article
- A Qualitative Study of the Diagnostic Experiences of Young Autistic Adults in China.Journal of autism and developmental disorders · 2025Article
- Game Changer: Exploring the Role of Board Games in the Lives of Autistic People.Journal of autism and developmental disorders · 2025Article
- Emotional Arousal-Induced Episodic Memory Benefits Are Attenuated in Autism Spectrum Disorders, Especially in Older Age.Autism research : official journal of the International Society for Autism Research · 2025Article
- "From That Moment, Everything has Changed": The Experience of Women With Anorexia Nervosa Receiving a Diagnosis of Autism.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Prevalence of autism among adults in Canada: results from a simulation modelling study.BMJ open · 2025Article
- Building Better Medicine: Translational Justice and the Quest for Equity in US Healthcare.The American journal of bioethics : AJOB · 2025Article
- What Matters Most? An Exploration of Quality of Life Through the Everyday Experiences of Autistic Young People and Adults.Autism in adulthood · 2025Article
- Barriers to healthcare predict reduced health-related quality of life in autistic adults without intellectual disability.Autism : the international journal of research and practice · 2025Article
- A critical hit: Dungeons and Dragons as a buff for autistic people.Autism : the international journal of research and practice · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.