ArticlePalliative medicine2022
Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview study.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- AI in Psychiatry for Improving Continuity of Patient Care: Protocol for a Mixed Methods Systematic Review.JMIR research protocols · 2026Article
- Family Caregivers' Understanding, Expectations, and Emotional Responses During Transition to a Palliative Care Unit: A Qualitative Study.Nursing open · 2026Article
- Understanding multilevel influences on the adaptation of a complex intervention for oncology to palliative care transitions: a qualitative study across seven European countries.BMC palliative care · 2026Article
- Article
- Experiences and barriers in downward referral decision-making for palliative care patient caregivers under China's three-tiered linkage model: A qualitative study.Asia-Pacific journal of oncology nursing · 2025Article
- Family perceptions of the transition from hospital to home palliative care: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- 'Early planning makes for a good death': residential aged care nurses' views on caring for those in the last months of life.BMC nursing · 2025Article
- Article
- Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- Experiences of family caregivers of patients with end-of-life cancer during the transition from hospital to home palliative care: a qualitative study.BMC palliative care · 2024Article
- Preparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- Patients near death receiving specialized palliative home care being transferred to inpatient care - a registry study.BMC palliative care · 2024Article
- Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study.International journal of environmental research and public health · 2022Article
- Communication of palliative care needs in discharge letters from hospice providers to primary care: a multisite sequential explanatory mixed methods study.BMC palliative care · 2022Article
- Patients' Experiences in the Transition From Hospital to Home Palliative Care: A Systematic Review and Thematic Synthesis of Qualitative Studies.SAGE open nursingReview
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundTransitions between care settings (hospice, hospital and community) can be challenging for patients and family caregivers and are often an under-researched area of health care, including palliative care.
aimTo explore the experience of transitions between care settings for those receiving specialist palliative care.
designQualitative study using thematic analysis. SETTING/
participantsSemi-structured interviews were conducted with adult patients (
resultsFour themes were identified. (1) Uncertainty about the new care setting. Most participants reported that lack of information about the new setting of care, and difficulties with access and availability of care in the new setting, added to feelings of uncertainty. (2) Biographical disruption. The transition to the new setting often resulted in changes to sense of independence and identity, and maintaining normality was a way to cope with this. (3) Importance of continuity of care. Continuity of care had an impact on feelings of safety in the new setting and influenced decisions about the transition. (4) Need for emotional and practical support. Most participants expressed a greater need for emotional and practical support, when transitioning to a new setting.
conclusionsFindings provide insights into how clinicians might better negotiate transitions for these patients and family caregivers, as well as improve patient outcomes. The complexity and diversity of transition experiences, particularly among patients and families from different ethnicities and cultural backgrounds, need to be further explored in future research.
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