Evidence map›Paper›PMID 34475153›Full record

SynthesisBMJ open2021

Systematic review on the use of patient-held health records in low-income and middle-income countries.

Linju Joseph, Anna Lavis, Sheila Greenfield, Dona Boban, Claire Humphries, Prinu Jose, Panniyammakal Jeemon, Semira Manaseki-Holland

Open access · goldAbstract readSystematic Review
In one paragraph

Synthesis in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
2.1field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 17 citations in OpenAlex.

  1. Electronic Personal Health Records for Mobile Populations: A Rapid Systematic Literature Review.International journal of environmental research and public health · 2025
    Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. Article
  8. Review
  9. Patients', carers' and healthcare providers' views of patient-held health records in Kerala, India: A qualitative exploratory study.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  10. Article
  11. Article
  12. Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 2 countries.

Linju JosephInstitute of Applied Health Research, University of Birmingham Edgbaston Campus, Birmingham, UK.ORCID 0000-0003-2043-1097
Anna LavisInstitute of Applied Health Research, University of Birmingham Edgbaston Campus, Birmingham, UK.
Sheila GreenfieldInstitute of Applied Health Research, University of Birmingham Edgbaston Campus, Birmingham, UK.ORCID 0000-0002-8796-4114
Dona BobanAmrita Institute of Medical Sciences, Cochin, India.
Claire HumphriesBirmingham City Council, Birmingham, UK.ORCID 0000-0001-9784-5218
Prinu JosePublic Health Foundation of India, New Delhi, India.
Panniyammakal JeemonSree Chitra Tirunal Institute for Medical Sciences and Technology, Thiruvananthapuram, India.
Semira Manaseki-HollandDepartment of Public Health, Epidemiology and Biostatistics, University of Birmingham Edgbaston Campus, Birmingham, UK s.manasekiholland@bham.ac.uk.
The Edgbaston Hospital · GBAmrita Institute of Medical Sciences and Research Centre · INBirmingham City Council · GBPublic Health Foundation of India · INSree Chitra Thirunal Institute for Medical Sciences and Technology · IN

Funding

Medical Research Council MR/M00287X/1
6 · The paper itself

Abstract

objectiveTo review the available evidence on the benefit of patient-held health records (PHRs), other than maternal and child health records, for improving the availability of medical information for handover communication between healthcare providers (HCPs) and/or between HCPs and patients in low-income and middle-income countries (LMICs).

methodsThe literature searches were conducted in PubMed, EMBASE, CINAHL databases for manuscripts without any restrictions on dates/language. Additionally, articles were located through citation checking using previous systematic reviews and a grey literature search by contacting experts, searching of the WHO website and Google Scholar.

resultsSix observational studies in four LMICs met the inclusion criteria. However, no studies reported on health outcomes after using PHRs. Studies in the review reported patients' experience of carrying the records to HCPs (n=3), quality of information available to HCPs (n=1) and the utility of these records to patients (n=6) and HCPs (n=4). Most patients carry PHRs to healthcare visits. One study assessed the completeness of clinical handover information and found that only 41% (161/395) of PHRs were complete with respect to key information on diagnosis, treatment and follow-up. No protocols or guidelines for HCPs were reported for use of PHRs. The HCPs perceived the use of PHRs improved medical information availability from other HCPs. From the patient perspective, PHRs functioned as documented source of information about their own condition.

conclusionLimited data on existing PHRs make their benefits for improving health outcomes in LMICs uncertain. This knowledge gap calls for research on understanding the dynamics and outcomes of PHR use by patients and HCPs and in health systems interventions. PROSPERO REGISTRATION NUMBER: CRD42019139365.

Indexed as

Developing CountriesHealth Records, PersonalChildCommunicationHealth PersonnelHumansPovertyinternational health servicespublic healthquality in health care

Identifiers

PMID34475153
PMCPMC8413937
OpenAlexW3198212013

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.