ArticleNursing research
Decision-Making Involvement, Self-Efficacy, and Transition Readiness in Youth With Sickle Cell Disease.
Article in Nursing research. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- The Role of Associated Treatment Factors and Mental Health on Transition From Pediatric to Adult Care for Adolescent/Young Adults With Sickle Cell Disease.Pediatric blood & cancer · 2026Article
- Parent and adolescent perspectives on decision-making involvement: A qualitative comparison in sickle cell and diabetes clinics.Patient education and counseling · 2026Article
- Transition readiness among Chinese adolescents with chronic diseases: the promoting role of self-efficacy and willingness to engage in healthcare.BMC health services research · 2025Article
- Self-Management for Youth Living with Sickle Cell Disease (SMYLS): A study protocol for a multisite randomized controlled trial testing a behavioral, mHealth app.Contemporary clinical trials · 2025Article
- The Impact of Perceived Self-Efficacy on Healthcare Transition Outcomes: Perceptions From Parents and Young People.Child: care, health and development · 2025Article
- Level of Healthcare Facility and Psychosocial Factors Influence Perceived Self-Efficacy for Appropriate Use of Hydroxyurea: Experience from Caregivers of Children with Sickle Cell Disease in Tanzania.Healthcare (Basel, Switzerland) · 2025Article
- Preparing adolescents and young adults with epilepsy for transitioning health care (PATH) study: The important role of age and self-efficacy.Epilepsy & behavior : E&B · 2025Article
- Bibliometric analysis of transition readiness in adolescents with chronic diseases.Health care transitions · 2025Review
- Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs.Health care transitions · 2025Article
- The genogram as a recruitment tool for identifying primary caregivers of youth living with sickle cell disease preparing for transition.Journal of advanced nursing · 2023Article
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Authors and funding
6 authors.
Funding
Abstract
backgroundTransition to adult healthcare is a critical time for adolescents and young adults (AYAs) with sickle cell disease, and preparation for transition is important to reducing morbidity and mortality risks associated with transition.
objectiveWe explored the relationships between decision-making involvement, self-efficacy, healthcare responsibility, and overall transition readiness in AYAs with sickle cell disease prior to transition.
methodsThis cross-sectional, correlational study was conducted with 50 family caregivers-AYAs dyads receiving care from a large comprehensive sickle cell clinic between October 2019 and February 2020. Participants completed the Decision-Making Involvement Scale, the Sickle Cell Self-Efficacy Scale, and the Readiness to Transition Questionnaire. Multiple linear regression was used to assess the relationships between decision-making involvement, self-efficacy, healthcare responsibility, and overall transition readiness in AYAs with sickle cell disease prior to transition to adult healthcare.
resultsWhereas higher levels of expressive behaviors, such as sharing opinions and ideas in decision-making, were associated with higher levels of AYA healthcare responsibility, those behaviors were inversely associated with feelings of overall transition readiness. Self-efficacy was positively associated with overall transition readiness but inversely related to AYA healthcare responsibility. Parent involvement was negatively associated with AYA healthcare responsibility and overall transition readiness. DISCUSSION: While increasing AYAs' decision-making involvement may improve AYAs' healthcare responsibility, it may not reduce barriers of feeling unprepared for the transition to adult healthcare. Facilitating active AYA involvement in decision-making regarding disease management, increasing self-efficacy, and safely reducing parent involvement may positively influence their confidence and capacity for self-management.
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