Evidence map›Paper›PMID 34468907›Full record

ArticleJournal of autism and developmental disorders2022

Parental Experiences with Early Identification and Initial Care for their Child with Autism: Tailored Improvement Strategies.

Michelle I J Snijder, Ilse P C Langerak, Shireen P T Kaijadoe, Marrit E Buruma, Rianne Verschuur, Claudine Dietz, Jan K Buitelaar, Iris J Oosterling

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
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  7. Exploring Factors of Diagnostic Timing Among Black Autistic Youth.Journal of autism and developmental disorders · 2025
    Article
  8. Article
  9. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Michelle I J SnijderKarakter Child and Adolescent Psychiatry University Centre, Reinier Postlaan 12, Nijmegen, 6525 GC, The Netherlands. m.snijder@karakter.com.ORCID http://orcid.org/0000-0001-9630-6984
Ilse P C LangerakApanta GGZ, Veldhoven, The Netherlands.
Shireen P T KaijadoeKarakter Child and Adolescent Psychiatry University Centre, Reinier Postlaan 12, Nijmegen, 6525 GC, The Netherlands.
Marrit E BurumaINTER-PSY, Groningen, The Netherlands.
Rianne VerschuurDr Leo Kannerhuis, Arnhem, The Netherlands.
Claudine DietzKarakter Child and Adolescent Psychiatry University Centre, Reinier Postlaan 12, Nijmegen, 6525 GC, The Netherlands.
Jan K BuitelaarKarakter Child and Adolescent Psychiatry University Centre, Reinier Postlaan 12, Nijmegen, 6525 GC, The Netherlands.
Iris J OosterlingKarakter Child and Adolescent Psychiatry University Centre, Reinier Postlaan 12, Nijmegen, 6525 GC, The Netherlands.

Funding

Korckzak Foundation Grant No. 2018-01
6 · The paper itself

Abstract

Whereas it is well documented how parents experience the diagnostic process of their child with autism spectrum disorder (ASD), less is known about parental experiences with the course of the early identification process and first steps in receiving care for their child with ASD symptoms. This mixed-method study investigated these experiences as well as barriers and improvement strategies regarding early detection in the Netherlands. A parental survey (N = 45) showed that, on average, initial concerns started at 22 months. A focus group (N = 10) revealed multiple barriers and proposed strategies of improvement in three domains: "Knowledge and Expertise", "Attention to Parental Needs" and "System and Organization". Strategies to improve early identification will be discussed based on parental perspectives and professional perspectives.

Indexed as

Autism Spectrum DisorderAutistic DisorderChildEarly DiagnosisHumansParentsRisk AssessmentAutism spectrum disorderEarly detectionImprovement strategiesParental experiencesPreventive care

Identifiers

PMID34468907
PMCPMC9296376

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.