ArticleDevelopmental medicine and child neurology2022
Research priorities for children with neurological impairment and medical complexity in high-income countries.
Article in Developmental medicine and child neurology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed.
- Most costly and prevalent reasons for hospitalization in children with medical complexity in Ontario, Canada.Journal of hospital medicine · 2026Article
- Caregiver priorities and healthcare outcomes in a pediatric home care service for children with medical complexity: a quasi-experimental study.European journal of pediatrics · 2026Article
- The health-related benefits and complications of tube-fed blended diet for children and young people.Gastrointestinal nursing · 2025Article
- Involving people with lived experience when setting cerebral palsy research priorities: A scoping review.Developmental medicine and child neurology · 2025Article
- Health problems in children with profound intellectual and multiple disabilities: a scoping review.European journal of pediatrics · 2024Article
- Intravenous antibiotics for urinary tract infections in children with neurologic impairment.Journal of hospital medicine · 2024Article
- Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit.Journal of palliative medicine · 2024Article
- Factors Associated with Substance Use Disorder among High-Need Adolescents and Young Adults in North Carolina.North Carolina medical journal · 2024Article
- Prioritization of Randomized Clinical Trial Questions for Children Hospitalized With Common Conditions: A Consensus Statement.JAMA network open · 2024Article
- Consensus reporting guidelines to address gaps in descriptions of ultra-rare genetic conditions.NPJ genomic medicine · 2024Article
- Identifying Research Priorities to Promote the Well-Being of Family Caregivers of Canadians with Intellectual and/or Developmental Disabilities: A Pilot Delphi Study.International journal of environmental research and public health · 2023Article
- Pharmacogenetic profiling via genome sequencing in children with medical complexity.Pediatric research · 2023Article
- Trajectories of medication use and polypharmacy among children with cerebral palsy.Journal of managed care & specialty pharmacy · 2023Article
- Clinical characteristics of children with severe neurologic impairment: A scoping review.Journal of hospital medicine · 2023Article
- Neurodevelopmental copy-number variants: A roadmap to improving outcomes by uniting patient advocates, researchers, and clinicians for collective impact.American journal of human genetics · 2022Review
- Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital Medicine.JAMA network open · 2022Article
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Authors and funding
11 authors.
Funding
Abstract
aimTo identify the highest-priority clinical research areas related to children with neurological impairment and medical complexity among clinicians and caregivers.
methodA modified, three-stage Delphi study using online surveys and guided by a steering committee was completed. In round 1, clinicians and family caregivers suggested clinical topics and related questions that require research to support this subgroup of children. After refinement of the suggestions by the steering committee, participants contributed to 1 (family caregivers) or 2 (clinicians) subsequent rounds to develop a prioritized list.
resultsA diverse international expert panel consisting of 49 clinicians and 12 family caregivers provided 601 responses. Responses were distilled into 26 clinical topics comprising 126 related questions. The top clinical topics prioritized for research were irritability and pain, child mental health, disorders of tone, polypharmacy, sleep, aspiration, behavior, dysautonomia, and feeding intolerance. The clinician expert panel also prioritized 10 specific research questions.
interpretationStudy findings support a research agenda for children with neurological impairment and medical complexity focused on addressing clinical questions, prioritized by an international group of clinicians and caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.