Evidence map›Paper›PMID 34459407›Full record

ArticleJournal of Alzheimer's disease : JAD2021

Goals of Care Conversations and Subsequent Advance Care Planning Outcomes for People with Dementia.

Heather Ma, Rachel E Kiekhofer, Sarah M Hooper, Sarah Dulaney, Katherine L Possin, Winston Chiong

Open access · greenAbstract read
In one paragraph

Article in Journal of Alzheimer's disease : JAD, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
1.8field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 18 citations in OpenAlex.

  1. Article
  2. Article
  3. Dissemination of the Care Ecosystem Collaborative Care Model for Dementia.Journal of the American Geriatrics Society · 2025
    Article
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Heather MaUniversity of California, San Francisco School of Medicine, San Francisco, CA, USA.
Rachel E KiekhoferMemory and Aging Center, Department of Neurology, UCSF Weill Institute for Neuroscience, University of California, San Francisco, San Francisco, CA, USA.
Sarah M HooperUCSF/UC Consortium on Law, Science & Health Policy, UC Hastings College of the Law, San Francisco, San Francisco, CA, USA.
Sarah DulaneyMemory and Aging Center, Department of Neurology, UCSF Weill Institute for Neuroscience, University of California, San Francisco, San Francisco, CA, USA.
Katherine L PossinMemory and Aging Center, Department of Neurology, UCSF Weill Institute for Neuroscience, University of California, San Francisco, San Francisco, CA, USA.
Winston ChiongMemory and Aging Center, Department of Neurology, UCSF Weill Institute for Neuroscience, University of California, San Francisco, San Francisco, CA, USA.
University Memory and Aging Center · USUniversity of California, San Francisco · USUniversity of California Hastings College of the Law · USUniversity of California System · US

Funding

Decision-Making in Genetic FTDR01AG022983 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI CHIONG, WINSTON · 2004 to 2021
$6.0M
The Care Ecosystem: Navigating patients and caregivers through stages of dementia careR01AG056715 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI POSSIN, KATHERINE LAUREL · 2017 to 2021
$6.0M
Decision-making abilities in Alzheimer's Disease and related dementias: From clinical standards to decision neuroscienceR01AG058817 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI CHIONG, WINSTON · 2018 to 2022
$3.4M
NIA NIH HHS R01 AG022983NIA NIH HHS R01 AG056715NIA NIH HHS R01 AG058817
6 · The paper itself

Abstract

backgroundAdvance care planning has been shown to improve end of life decision-making for people with dementia. However, the impact of goals of care conversations between people with dementia and their caregivers has not been characterized.

objectiveIn this study, we evaluate the association between goals of care conversations and advance care planning outcomes.

methodsRetrospective advance care planning measures were collected via a questionnaire administered to 166 caregivers after the death of the person with dementia for whom they provided care.

resultsAt time of death, the majority of decedents with dementia had advance directives, health care agents, and previous goals of care conversations with their caregiver. Goals of care conversations were significantly associated with the perceived usefulness of advance directives, the perceived adherence to advance directives, and decedent dying at their desired place of death, but not with disagreements around end-of-life care.

conclusionOur findings suggest that goals of care conversations are an important component of advance care planning. These findings support the development of interventions that facilitate such conversations between people with dementia and their caregivers.

Indexed as

Advance Care PlanningCommunicationDecision MakingPatient Care PlanningCaregiversDementiaFemaleHumansMaleRetrospective StudiesSurveys and QuestionnairesTerminal CareAdvance care planningAlzheimer’s diseasedementiapatient preferenceterminal care

Identifiers

PMID34459407
PMCPMC9034733
OpenAlexW3195617945

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.