Evidence map›Paper›PMID 34456876›Full record

ArticleFrontiers in endocrinology2021

Psychological Well-Being of Parents of Very Young Children With Type 1 Diabetes - Baseline Assessment.

Carine de Beaufort, Ineke M Pit-Ten Cate, Ulrike Schierloh, Nathan Cohen, Charlotte K Boughton, Martin Tauschmann, Janet M Allen, Katrin Nagl, Maria Fritsch, James Yong and 19 more

Open access · goldAbstract read
In one paragraph

Article in Frontiers in endocrinology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.0field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 11 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

29 authors at 13 institutions in 5 countries.

Carine de BeaufortDiabetes & Endocrine Care Clinique Pediatrique (DECCP)-Pediatric Clinic, Pediatric Clinic/Centre Hospitalier de Luxembourg DECCP, Luxembourg, Luxembourg.
Ineke M Pit-Ten CateLuxembourg Center for Educational Assessment, University of Luxembourg, Esch sur Alzette, Luxembourg.
Ulrike SchierlohDiabetes & Endocrine Care Clinique Pediatrique (DECCP)-Pediatric Clinic, Pediatric Clinic/Centre Hospitalier de Luxembourg DECCP, Luxembourg, Luxembourg.
Nathan CohenJaeb Center for Health Research, Tampa, FL, United States.
Charlotte K BoughtonWellcome Trust-Medical Research Council (MRC) Institute of Metabolic Science, University of Cambridge, Cambridge, United Kingdom.
Martin TauschmannWellcome Trust-Medical Research Council (MRC) Institute of Metabolic Science, University of Cambridge, Cambridge, United Kingdom.
Janet M AllenWellcome Trust-Medical Research Council (MRC) Institute of Metabolic Science, University of Cambridge, Cambridge, United Kingdom.
Katrin NaglDepartment of Pediatric and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
Maria FritschDepartment of Pediatric and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
James YongDepartment of Paediatric Diabetes, Leeds Children´s Hospital, Leeds, United Kingdom.
Emily MetcalfeDepartment of Paediatric Diabetes, Leeds Children´s Hospital, Leeds, United Kingdom.
Dominique SchaefferDiabetes & Endocrine Care Clinique Pediatrique (DECCP)-Pediatric Clinic, Pediatric Clinic/Centre Hospitalier de Luxembourg DECCP, Luxembourg, Luxembourg.
Muriel FichelleDiabetes & Endocrine Care Clinique Pediatrique (DECCP)-Pediatric Clinic, Pediatric Clinic/Centre Hospitalier de Luxembourg DECCP, Luxembourg, Luxembourg.
Alena G ThieleDivision of Paediatric Diabetology, University of Leipzig, Leipzig, Germany.
Daniela AbtDepartment of Pediatrics 1, Medical University of Innsbruck, Innsbruck, Austria.
Kerstin FaningerDepartment of Paediatrics and Adolescent Medicine, Medical University of Graz, Graz, Austria.
Julia K MaderDepartment of Internal Medicine, Division of Endocrinology and Diabetology, Medical University of Graz, Graz, Austria.
Sonja SlegtenhorstDepartment of Nutrition & Dietetics, Cambridge University Hospitals National Health Service (NHS) Foundation Trust, Cambridge, United Kingdom.
Nicole AshcroftWellcome Trust-Medical Research Council (MRC) Institute of Metabolic Science, University of Cambridge, Cambridge, United Kingdom.
Malgorzata E WilinskaWellcome Trust-Medical Research Council (MRC) Institute of Metabolic Science, University of Cambridge, Cambridge, United Kingdom.
Judy SibayanJaeb Center for Health Research, Tampa, FL, United States.
Craig KollmanJaeb Center for Health Research, Tampa, FL, United States.
Sabine E HoferDepartment of Pediatrics 1, Medical University of Innsbruck, Innsbruck, Austria.
Elke Fröhlich-ReitererDepartment of Paediatrics and Adolescent Medicine, Medical University of Graz, Graz, Austria.
Thomas M KapellenDivision of Paediatric Diabetology, University of Leipzig, Leipzig, Germany.
Carlo L AceriniDepartment of Pediatrics, University of Cambridge, Cambridge, United Kingdom.
Fiona CampbellDepartment of Paediatric Diabetes, Leeds Children´s Hospital, Leeds, United Kingdom.
Birgit Rami-MerharDepartment of Pediatric and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
Roman HovorkaWellcome Trust-Medical Research Council (MRC) Institute of Metabolic Science, University of Cambridge, Cambridge, United Kingdom.
Centre Hospitalier de Luxembourg · LUMedical University of Graz · ATUniversity of Cambridge · GBJaeb Center for Health Research · USLeeds Teaching Hospitals NHS Trust · GBLeipzig University · DEMedical University of Vienna · ATUniversität Innsbruck · ATCambridge University Hospitals NHS Foundation Trust · GBMedical Research Council · GBUniversity of Luxembourg · LUWellcome/MRC Institute of Metabolic Science · GBWellcome Trust · GB

Funding

Department of HealthWellcome Trust 100574/Z/12/Z
6 · The paper itself

Abstract

Background: Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental well-being and child behavior. Methods: All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ). Results: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (<6). Parental well-being was negatively associated with HFS total ( Conclusion: Regular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention.

Indexed as

AdultAge of OnsetAnxietyChildChild BehaviorChild, PreschoolDiabetes Mellitus, Type 1EuropeFearFemaleHumansHypoglycemiaInfantInsulinInsulin Infusion SystemsMaleInsulinchild behaviorhypoglycemia fearparental well-beingsleepinesstype 1 diabetesvery young children

Identifiers

PMID34456876
PMCPMC8397439
OpenAlexW3192115104

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.