ArticlePalliative medicine2021
Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005-2019.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed.
- A Psychometric Evaluation of the Staff-Reported EOLD-CAD Measure Among Nursing Home Residents With Cognitive Impairment.International journal of geriatric psychiatry · 2025Trial
- Impact of the DEDICATED approach to optimizing palliative care for people with dementia: a multi-method study.BMC health services research · 2025Article
- Article
- Supporting Family Caregivers of Nursing Home Residents with Dementia in Their Last Week of Life: A Survey Among Bereaved Family Caregivers.Palliative medicine reports · 2025Article
- Models of care for people with dementia approaching end of life: A rapid review.Palliative medicine · 2023Review
- Implementing Palliative Care Teams Specialized in Dementia in Two Countries: Experiences of Failure and Success.Journal of Alzheimer's disease : JAD · 2023Article
- Prevalence and Predictors of Symptoms in Persons with Advanced Dementia Living in the Community.Journal of palliative medicine · 2022Article
Corrections and comments
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Authors and funding
18 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDementia palliative care is increasingly subject of research and practice improvement initiatives.
aimTo assess any changes over time in the evaluation of quality of care and quality of dying with dementia by family caregivers.
designCombined analysis of eight studies with bereaved family caregivers' evaluations 2005-2019. SETTING/
participantsFamily caregivers of nursing home residents with dementia in the Netherlands (
resultsThe mean total EOLD-SWC score was 33.40 (SD 5.08) and increased by 0.148 points per year (95% CI, 0.052-0.244; adjusted 0.170 points 95% CI, 0.055-0.258). The mean total EOLD-CAD score was 30.80 (SD 5.76) and, unadjusted, there was a trend of decreasing quality of dying over time of -0.175 points (95% CI, -0.291 to -0.058) per year increment. With adjustment, the trend was not significant (-0.070 EOLD-CAD total score points, 95% CI, -0.205 to 0.065) and only the EOLD-CAD subscale 'Well being' decreased.
conclusionWe identified divergent trends over 14 years of increased quality of care, while quality of dying did not increase and well-being in dying decreased. Further research is needed on what well-being in dying means to family. Quality improvement requires continued efforts to treat symptoms in dying with dementia.
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