Evidence map›Paper›PMID 34444879›Full record

ArticleNutrients2021

Adaptation and Validation of a Questionnaire to Evaluate Knowledge of the Low Phe Diet in PKU.

Rodolfo Ramos-Álvarez, Maili Kapp, María Mercedes Rodríguez-Ruiz, Rocío Fausor, María Amor Bueno-Delgado, Kirsten Ahring, Susan E Waisbren

Open access · goldAbstract readValidation Study
PubMed Full text at PMC Publisher
In one paragraph

Article in Nutrients, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
0.1field-weighted citation impact, top 52% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 1 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 6 institutions in 3 countries.

Rodolfo Ramos-ÁlvarezDepartment of Social Psychology, Melilla Campus, Granada University, 52005 Melilla, Spain.
Maili KappTeaching Innovation Project (Code: 14-82), Melilla Campus, Granada University, 52005 Melilla, Spain.
María Mercedes Rodríguez-RuizOsakidetza, Basque Health Service, 010006 Vitoria, Spain.
Rocío FausorDepartment of Personality, Assessment and Clinical Psychology, Complutense University of Madrid, 28223 Madrid, Spain.ORCID 0000-0002-0309-3391
María Amor Bueno-DelgadoPediatrics Service, Virgen del Rocío University Hospital, 41013 Sevilla, Spain.
Kirsten AhringCenter for PKU, Copenhagen University Hospital, 2600 Copenhagen, Denmark.
Susan E WaisbrenGenetics and Metabolism Programs, Boston Children's Hospital, Harvard Medical School, Harvard University, Boston, MA 02115, USA.
Universidad de Granada · ESBoston Children's Hospital · USCopenhagen University Hospital · DKHospital Universitario Virgen del Rocío · ESOsakidetza · ESUniversidad Complutense de Madrid · ES

Funding

Universidad de Granada 14-82
6 · The paper itself

Abstract

Phenylketonuria (PKU) is an autosomal recessive disorder of phenylalanine (Phe) metabolism, causing a build-up of Phe in the body. Treatment consists of a Phe-restricted diet for life and regular determination of blood Phe levels to monitor the intake of Phe. Despite the fact that diet is the cornerstone of treatment, there are no studies examining common knowledge about food items and whether they are allowed as part of the PKU diet. Improving parents' and patients' knowledge and competence about the diet enables them to make appropriate food choices. This study validates a food-knowledge questionnaire first developed in Spanish and modified for English speaking populations. The questionnaire potentially helps parents to prepare appropriate meals and healthcare providers to create individualized educational programs about PKU for children and adolescents with this disorder.

Indexed as

Health Knowledge, Attitudes, PracticeAdolescentAdultChildChild, PreschoolDiet, Protein-RestrictedDiet SurveysFemaleHumansMaleMiddle AgedPhenylketonuriasReproducibility of ResultsSurveys and QuestionnairesTranslationsdiet knowledgephenylketonuriaPKUvalidation and adaptation of questionnaire

Identifiers

PMID34444879
PMCPMC8400675
OpenAlexW3188499575

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.