ArticleAging & mental health2022
A race against time: couples' lived diagnostic journeys to young-onset dementia.
Article in Aging & mental health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
4 citing papers in PubMed.
- Coping Styles Predict Timing of Dementia Diagnosis: Evidence From DETERMIND.International journal of geriatric psychiatry · 2026Article
- Development of a Best Practice Guidance on Online Peer Support for People with Young-Onset Dementia.Behavioral sciences (Basel, Switzerland) · 2024Article
- Post-diagnostic support for persons with young-onset dementia - a retrospective analysis based on data from the Swedish dementia registry SveDem.BMC health services research · 2024Article
- Together from the start: A transdiagnostic framework for early dyadic interventions for neurodegenerative diseases.Journal of the American Geriatrics Society · 2022Review
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposeYoung onset dementias (YOD) - typically defined by symptom onset before age 65 - are frequently overlooked in medical and community settings. Persons with YOD and their spouses face logistical and emotional challenges on their journey to a diagnosis (e.g. uncertainty about symptoms, lack of medical knowledge, emotional distress). An in-depth understanding of couples' experiences before and immediately following a YOD diagnosis is warranted to inform early psychosocial services for couples.
methodsWe utilized dyadic qualitative semi-structured interviews (
resultsFifteen couple-level themes were extracted within four domains: (1) early indicators of symptoms, (2) obtaining a diagnosis, (3) experiences with health care providers, and (4) emotional reactions to the diagnosis. Couples expressed difficulties communicating about early symptoms, receiving accurate and timely diagnostic information, and managing multiple emotions. They described the value of working together to manage care, gain information, establish positive relationships with providers, and promote adjustment.
conclusionFindings highlight the shared experiences of couples during the early stages of YOD, including the importance of strong communication with each other and providers. Early and accessible psychosocial services that help couples cope with and communicate about individual and shared stressors are warranted.
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Registered trials
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