ArticleJournal of autism and developmental disorders2022
"I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- Perspectives of South Korean Parents Toward Psychotropic Medication Use Among Autistic Individuals.Journal of autism and developmental disorders · 2026Article
- Access to Autism Behavioral Therapy Services: An Analysis of 2022-2023 National Survey of Children's Health Data.Journal of autism and developmental disorders · 2026Article
- Parental Health Literacy as a Determinant of Parenting Practices and Early Childhood Health Outcomes: A Systematic Review.Children (Basel, Switzerland) · 2026Review
- Health literacy and eHealth literacy in caregivers of students with special education needs: a cross-sectional survey study.International journal of developmental disabilities · 2026Article
- Development and evaluation of an autism information pack for culturally and linguistically diverse families: a quality improvement initiative.BMJ paediatrics open · 2025Article
- Deconstructing Information About Autism Diagnosis in Adults on TikTok: A Cross-Sectional, Descriptive Content Analysis.Journal of autism and developmental disorders · 2025Article
- A Lexicon-Based Analysis of Public Knowledge Regarding the Causes and Interventions for Autism Spectrum Disorder.Journal of autism and developmental disorders · 2025Article
- What I Wish I Had Known: Examining Parent Accounts of Managing the Health of Their Child With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.