Trial reportSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2022
Cancer survivors' greatest challenges of living with an ostomy: findings from the Ostomy Self-Management Telehealth (OSMT) randomized trial.
Trial report in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02974634 (Ostomy Telehealth For Cancer Survivors), which is not on this map. Cited by 10 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Ostomy Telehealth For Cancer Survivors
Who cites it
10 citing papers in PubMed, 2 syntheses or guidelines pooled it, 17 citations in OpenAlex.
- The invisible wall: experiences of social isolation in colorectal cancer patients with ostomy-a qualitative meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Effects of self-management interventions on self-care ability and quality of life in patients with urinary ostomy after bladder cancer: a systematic review and meta-analysis.Frontiers in oncology · 2026Pooled it
- Where healthcare systems fall short in long-term ostomy care: implications for quality of life, healthcare utilization, and sustainable care pathways.Frontiers in gastroenterology (Lausanne, Switzerland) · 2026Review
- The Effect of Mobile Education on Adjustment to Stoma, Self-efficacy, and Peristomal Skin Lesions: A Quasi-Experimental Study.Florence Nightingale journal of nursing · 2025Article
- Development and Validation of an Artificial Intelligence-Assisted Patient Education Material for Ostomy Patients: A Methodological Study.Journal of advanced nursing · 2025Article
- Is the social withdrawal subscale a valid instrument to assess social withdrawal among colorectal cancer survivors with permanent stomas? A validation study.BMC psychiatry · 2025Article
- Stigma and social withdrawal among colorectal cancer survivors with permanent stomas: the mediating role of social motivation in psychosocial adaptation.Frontiers in psychiatry · 2025Article
- Living with a permanent ostomy: a descriptive phenomenological study on postsurgical experiences in patients with colorectal cancer.BMJ open · 2024Article
- Development of a home health care service platform for ostomy patient management.Annals of coloproctology · 2024Article
- Impact of internet plus health education on urinary stoma caregivers in coping with care burden and stress in the era of COVID-19.Frontiers in psychology · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
21 authors at 9 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesAn ostomy results in lifelong quality of life changes for a cancer survivor. We describe the greatest challenges reported from a randomized trial of cancer survivors with stomas (ostomies).
methodsCancer survivors with ostomies participating in a multi-site randomized prospective trial of an Ostomy Self-Management Telehealth (OSMT) program versus usual care (UC) were surveyed at six months post accrual. An open-ended question requested greatest challenges after ostomy surgery. Quantitative descriptive and qualitative analyses were used to examine greatest challenges reported.
resultsA total of 118 trial participants identified greatest challenges with 55 in the OSMT and 63 in the UC. Six conceptual domains were used to code comments-physical, psychological, social, and spiritual quality of life; ostomy-specific issues, and healthcare issues. The OSMT contributed 187 comments, and UC contributed 235 comments. Ostomy specific issues and social well-being had the most comments overall with UC contributing more comments in all domains except physical well-being. Word Clouds revealed post-operative and treatment-related issues and going out in public as the most common challenges in both groups. Word Clouds compared types of ostomies revealing bowel function challenges (colostomy group), difficulties going out in public (ileostomy group), and positive support (urostomy group).
conclusionsFewer challenges submitted by the OSMT group provide the beginning evidence of the OSMT program impact. Dominant challenges across both groups were social well-being and ostomy care. Challenges varied by type of ostomy. Findings support long-term care and support for all cancer survivors with ostomies.
trial registrationNCT02974634.
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