ArticlePediatrics2021
Children With Special Health Care Needs and Forgone Family Employment.
Article in Pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 61 citations in OpenAlex.
- Experiences of family caregivers of children and youth with special health care needs in a medical home-connected virtual preparedness intervention.Families, systems & health : the journal of collaborative family healthcare · 2026Article
- Disparities in Health Insurance and Health care Access for Immigrant Children With Special Health care Needs.Academic pediatrics · 2026Article
- Issues navigating the healthcare delivery system among caregivers of children and youth with special healthcare needs: a qualitative study.BMC health services research · 2026Article
- Prevalence of Depression and Anxiety Symptoms Among Parents of Hospitalized Children in 14 Countries.Children (Basel, Switzerland) · 2025Article
- Navigating a New Normal: A Mixed-Methods Study of the Pediatric Tracheostomy Parent-Caregiver Experience.Children (Basel, Switzerland) · 2025Review
- Prevalence of Social Needs Among Hospitalized Children With Complex Chronic Conditions.Hospital pediatrics · 2025Article
- Understaffed Home Nursing and Wellbeing of Families of Children with Medical Complexity.Children (Basel, Switzerland) · 2025Article
- Promoting Health Equity for Children With Special Health Care Needs and Child Welfare Involvement.Hospital pediatrics · 2025Article
- Review
- Hospitalization- and death-related financial and employment effects in parents of children with life-limiting conditions: a fixed-effects analysis.European journal of pediatrics · 2024Article
- Bridging the gaps in pediatric complex healthcare: the case for home nursing care among children with medical complexity.BMC health services research · 2024Article
- Association between maternal employment status and presence of children with major congenital anomalies in Denmark.BMC public health · 2024Article
- Neighborhood Income Is Associated with Health Care Use in Pediatric Short Bowel Syndrome.The Journal of pediatrics · 2024Article
- Methods used to account for caregivers' sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review.ClinicoEconomics and outcomes research : CEOR · 2024Article
- Paying Family Medical Caregivers for Children's Home Healthcare in Colorado: A Working Medicaid Model.The Journal of pediatrics · 2023Article
- Caregiving Across the Life Course: A Health Policy Priority for North Carolina.North Carolina medical journal · 2023Article
- Admitting what is needed: How the health system and society can reduce hospitalizations for children with medical complexity.Journal of hospital medicine · 2023Article
- [Depression, anxiety, stress, and social support: a cross-sectional study with caregivers of visually impaired children in Rio de Janeiro, Brazil - Views-QoL Study].Cadernos de saude publica · 2023Article
- "I have a Ph.D. in my daughter": Mother and Child Experiences of Living with Childhood Chronic Illness.Journal of child and family studies · 2022Article
- Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.Children (Basel, Switzerland) · 2022Article
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Authors and funding
6 authors at 2 institutions in 2 countries.
Funding
Abstract
backgroundFamily income is known to affect child health, but this relationship can be bidirectional. We sought to characterize this relationship by quantifying forgone family employment (FFE) due to a child's health condition in families of children with special health care needs (CSHCN) with updated figures.
methodsWe conducted a secondary data analysis from the 2016-2017 National Survey of Children's Health. CSHCN with previously employed caregivers were included (
resultsFFE occurred in 14.5% (95% confidence interval [CI] 12.9%-16.1%) of previously employed families with CSHCN and was 40.9% (95% CI 27.1%-54.7%) for children with an intellectual disability. We observed disproportionately high FFE among CSHCN who were 0 to 5 years old and of Hispanic ethnicity. We found a strong association between FFE and increasing hours of family-provided medical care, with an adjusted odds ratio (aOR) of 1.72 (95% CI 1.25-2.36) for <1 hour per week (compared with 0 hours), an aOR of 5.96 (95% CI 4.30-8.27) for 1 to 4 hours per week, an aOR of 11.89 (95% CI 6.19-22.81) for 5 to 10 hours per week, and an aOR of 8.89 (95% CI 5.26-15.01) for >10 hours per week. Lost earnings for each household with FFE were estimated at ∼$18 000 per year.
conclusionsWith our findings, we highlight the need to implement programs and policies that address forgone income experienced by families of CSHCN.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.