ArticleInternet interventions2021
Tailoring the web-based 'Partner in Balance' intervention to support spouses of persons with frontotemporal dementia.
Article in Internet interventions, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 30 citations in OpenAlex.
- Impact of Self-Efficacy and Self-Esteem on Caregiver Burden in Formal and Informal Caregivers of People with Dependency: A Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- The Impact of Caring on Psychological Wellbeing: A Qualitative Study in Carers of People Living With Behavioural-Variant Frontotemporal Dementia.Journal of geriatric psychiatry and neurology · 2026Article
- Application-Based Interventions for Family Caregivers of Older Adults: Scoping Review.JMIR aging · 2026Article
- Digital health interventions for urinary tract infection prevention and management in people living with dementia and their family caregivers: a scoping review.The Gerontologist · 2026Article
- Article
- Striking a balance: health behaviour changes in Chinese spouses of people with dementia to manage dementia risk: a qualitative study.BMC nursing · 2024Article
- Evaluating the web-based 'Partner in Balance' program for informal caregivers of people with Huntington's disease: A pilot study.Internet interventions · 2024Article
- Feasibility and Preliminary Impact of a Web-Based Mind Body Intervention for Older Dementia Caregivers.Western journal of nursing research · 2024Article
- "Better Living with Non-memory-led Dementia": protocol for a feasibility randomised controlled trial of a web-based caregiver educational programme.Pilot and feasibility studies · 2023Article
- Usability Evaluation of a Knowledge Graph-Based Dementia Care Intelligent Recommender System: Mixed Methods Study.Journal of medical Internet research · 2023Article
- Implementation of e-Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis.JMIR mental health · 2022Review
- Behavioral Change Factors and Retention in Web-Based Interventions for Informal Caregivers of People Living With Dementia: Scoping Review.Journal of medical Internet research · 2022Article
- A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia.Internet interventions · 2022Article
- "You Don't Feel Alone": Perceptions of the My Tools 4 Care-In Care Web-Based Interactive Toolkit.Global qualitative nursing researchArticle
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Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Frontotemporal dementia (FTD) typically starts before the age of 65 years, and symptoms differ from other dementias (e.g. Alzheimer's dementia). Spouses are often caregiver and experience difficulty coping with the profound changes in personality and behavior accompanying FTD. Most interventions available to these spouses do not match their need for tailored and flexible psychosocial support. Therefore, tailored content for spouses of persons with FTD was recently incorporated in the proven effective and web-based Partner in Balance intervention.
methodsThis feasibility study prospectively evaluated the tailored Partner in Balance content for spouses of persons with FTD. Spouses followed the 8-week intervention, and qualitative and quantitative measures were used to evaluate expectations and barriers prior to participation and aspects of usability, feasibility, and acceptability of content. Additionally, effects were explored regarding caregiver self-efficacy, sense of mastery, stress, depression and anxiety.
resultsTwenty-seven spouses caring for a spouse with FTD at home started the intervention. Eventually, 20 completed the intervention (74.1%). Partner in Balance matched the expectations of participating spouses and helped them to find a better balance between caregiving and personal life, acquire more peace of mind, and facilitated coping with behavioral and communication difficulties. Before participation, time restraints were identified as a potential barrier, but afterwards spouses positively evaluated the flexibility of the web-based approach that allowed them to participate at a convenient time and place. They valued the recognizability of the videos and narrative stories on FTD. Post-intervention, spouses qualitatively felt more confident, more at ease, and strengthened as a caregiver. Quantitatively, levels of self-efficacy, anxiety and depression significantly improved.
conclusionsPartner in Balance is a usable, feasible, and acceptable intervention for spouses caring for a spouse with FTD at home. Healthcare organizations could consider adopting Partner in Balance in their daily practice to offer flexible and tailored support to spouses.
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