Evidence map›Paper›PMID 34428259›Full record

ArticlePloS one2021

Using an integrated knowledge translation approach to inform a pilot feasibility randomized controlled trial on peer support for individuals with traumatic brain injury: A qualitative descriptive study.

Stephanie K C Lau, Dorothy Luong, Shane N Sweet, Mark Bayley, Ben B Levy, Monika Kastner, Michelle L A Nelson, Nancy M Salbach, Susan B Jaglal, John Shepherd and 3 more

Open access · goldAbstract read
In one paragraph

Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.8field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 17 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 5 institutions in 1 country.

Stephanie K C LauFaculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada.ORCID 0000-0001-8102-102X
Dorothy LuongToronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
Shane N SweetDepartment of Kinesiology and Physical Education, McGill University, Montreal, Quebec, Canada.
Mark BayleyToronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
Ben B LevyTemerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
Monika KastnerNorth York General Hospital, Toronto, Ontario, Canada.
Michelle L A NelsonInstitute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Nancy M SalbachToronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
Susan B JaglalToronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
John ShepherdRehabilitation Sciences Institute, University of Toronto, Toronto, Ontario, Canada.
Ruth WilcockOntario Brain Injury Association, St. Catharines, Ontario, Canada.
Carla ThomsOntario Brain Injury Association, St. Catharines, Ontario, Canada.
Sarah E P MunceToronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada.
University Health Network · CAUniversity of Toronto · CACentre for Interdisciplinary Research in Rehabilitation · CANorth York General Hospital · CAUniversity of Ottawa · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionTraumatic brain injury (TBI) is estimated to affect 10 million people annually, making it a leading cause of morbidity and mortality worldwide. One cost-effective intervention that has been shown to minimize some of the negative sequelae after TBI is peer support. However, the evidence supporting the benefits of peer support for individuals with TBI is sparse and of low quality. Integrated knowledge translation (iKT) may be one approach to optimizing the evaluation of peer support programs among individuals with TBI. Therefore, the objectives are: (1) To understand key informants' perspectives of the barriers and facilitators of participating in peer support research and programs among individuals with TBI; (2) to understand key informants' perspectives on the perceived impacts of peer support programs on individuals with TBI; and, (3) to demonstrate how an iKT approach can inform the development and implementation of a pilot feasibility randomized controlled trial (RCT).

methodsA qualitative descriptive approach using one-on-one semi-structured interviews was used. Purposive sampling of 22 key informants included 8 peer support mentors, 4 individuals with TBI who received peer support, 3 caregivers of individuals with TBI, 4 peer support program staff, and 3 academics in peer support and/or TBI.

resultsThere were five main themes related to the barriers and facilitators to participating in peer support research and programs: knowledge, awareness, and communication; logistics of participating; readiness and motivation to participate; need for clear expectations; and matching. There were three main themes related to the perceived impact of peer support: acceptance, community, social experiences; vicarious experience/learning through others: shared experiences, role-modelling, encouragement; and "I feel better." Discussions with our Research Partner led to several significant adaptations to our trial protocol, including removing the twice/week intervention arm, shortening of the length of trial, and changing the measure for the community integration outcome. DISCUSSION/

conclusionThis is the first study to use an iKT approach to inform a trial protocol and the first to assess the barriers and facilitators to participating in peer support research.

Indexed as

AwarenessBrain Injuries, TraumaticCaregiversFeasibility StudiesHumansInterviews as TopicKnowledgeMentorsMotivationPeer GroupProgram EvaluationQualitative ResearchRandomized Controlled Trials as Topic

Identifiers

PMID34428259
PMCPMC8384186
OpenAlexW3194083452

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.