ArticleJournal of pain and symptom management2022
Pediatric Palliative Care Parents' Distress, Financial Difficulty, and Child Symptoms.
Article in Journal of pain and symptom management, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 64 citations in OpenAlex.
- Effectiveness of psychological interventions for parents of children eligible for paediatric palliative care: a systematic review and meta-analysis.Frontiers in psychology · 2026Pooled it
- A Mixed-Methods Exploration of the Quality of Care and Care Needs for Asian Children and Young Adults With Serious Long-Term Conditions.Health expectations : an international journal of public participation in health care and health policy · 2026Observational
- Measuring the psychological symptoms of pediatric palliative care patients and their caregivers: a scoping review of available instruments.BMC psychology · 2026Article
- Article
- Narrative Medicine in Pediatric anti‑NMDA Receptor Encephalitis: A Mixed‑methods Evaluation of Triadic Outcomes Among Children, Parents, and Healthcare Providers.Journal of multidisciplinary healthcare · 2026Article
- Criteria for unmet need in paediatric populations and their families: a literature-based case study in haematological malignancies in upper-middle and high-income countries.Frontiers in pediatrics · 2026Review
- Relationship Between Social Determinants of Health and Domains of Care Addressed During Pediatric Palliative Care Visits for Children with Cancer.Children (Basel, Switzerland) · 2025Article
- Assessment of Caregiver Burden and Burnout in Pediatric Palliative Care: A Path Toward Improving Children's Well-Being.Healthcare (Basel, Switzerland) · 2025Article
- Exploring pediatric palliative care in Luxembourg: a mixed-methods study.BMC palliative care · 2025Article
- Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care.Journal of pain and symptom management · 2025Article
- Allostatic Load Borne by Caregivers of Children with Serious Conditions: Acceptability of Self-Reported Data.Palliative medicine reports · 2025Article
- Families of adolescents and young adults with complex chronic conditions: socioeconomic impact after ten years.Revista brasileira de enfermagem · 2025Article
- Hospitalization- and death-related financial and employment effects in parents of children with life-limiting conditions: a fixed-effects analysis.European journal of pediatrics · 2024Article
- Preparing for Death While Investing in Life: A Narrative Inquiry and Case Report of Home-Based Paediatric Palliative, End-of-Life, and After-Death Care.Children (Basel, Switzerland) · 2023Article
- Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs-a scoping review.BMC palliative care · 2023Article
- Measuring Pediatric Palliative Care Quality: Challenges and Opportunities.Journal of pain and symptom management · 2023Article
- Parent Priorities in End-of-Life Care for Children With Cancer.JAMA network open · 2023Article
- Searching for human connection to transcend symbolisms in pediatric palliative care.Revista brasileira de enfermagem · 2023Article
- Pediatric Oncology, Palliative Care and Low- or Middle- Income Countries: A Call for Action.Global pediatric health · 2023Review
- A Qualitative Study of Clinicians and Parents of Children with Severe Neurological Impairment on Tools to Support Family-Centered Care.Journal of palliative medicine · 2022Article
Corrections and comments
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Authors and funding
13 authors at 9 institutions in 1 country.
Funding
Abstract
contextParents of patients with a serious illness experience psychological distress, which impacts parents' wellbeing and, potentially, their ability to care for their children. Parent psychological distress may be influenced by children's symptom burden and by families' financial difficulty.
objectivesThis study examined the associations among parent psychological distress, parent-reported patient symptoms, and financial difficulty, seeking to determine the relative association of financial difficulty and of patient symptoms to parent psychological distress.
methodsCross-sectional study of baseline data for 601 parents of 532 pediatric palliative care patients enrolled in a prospective cohort study conducted at seven US children's hospitals. Data included self-reported parent psychological distress and parent report of child's symptoms and family financial difficulty. We used ordinary least squares multiple regressions to examine the association between psychological distress and symptom score, between psychological distress and financial difficulty, and whether the degree of financial difficulty modified the relationship between psychological distress and symptom score.
resultsThe majority of parents were moderately to severely distressed (69%) or severely distressed (17%) and experienced some degree of financial difficulty (65%). While children's symptom scores and family financial difficulty together explained more of the variance in parental psychological distress than either variable alone, parental distress was associated more strongly, and to a larger degree, with financial difficulty than with symptom scores alone.
conclusionsParent psychological distress was associated with parent-reported patient symptoms and financial difficulty. Future work should examine these relationships longitudinally, and whether interventions to improve symptom management and ameliorate financial difficulties improve parental outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.