ArticleBMC pulmonary medicine2021
Identifying specific needs in adult cystic fibrosis patients: a pilot study using a custom questionnaire.
Article in BMC pulmonary medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02924818 (Cohort for Research and Innovation in Chronic Inflammatory Respiratory Diseases), which is not on this map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Cohort for Research and Innovation in Chronic Inflammatory Respiratory Diseases: The RINNOPARI Project
Who cites it
3 citing papers in PubMed, 5 citations in OpenAlex.
- What are the symptoms and concerns of young adults living with life-limiting conditions and how well are they captured by patient reported outcome measures? A mixed-methods systematic review and framework synthesis.Palliative medicine · 2026Review
- Work participation in adults with rare genetic diseases - a scoping review.BMC public health · 2023Article
- Health-Related Quality of Life in Adults with Cystic Fibrosis: Familial, Occupational, Social, and Mental Health Predictors.Healthcare (Basel, Switzerland) · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdult patients with cystic fibrosis (CF) experience daily physical symptoms and disabilities that can be challenging to address for health care teams.
methodsWe sought to identify the most frequent topics that CF adults need to discuss with health care teams using a custom questionnaire including 62 items.
resultsFifty patients were included, 70% men, mean age 27.6 years, with a mean body mass index of 21.8 kg/m
conclusionsUsing a custom questionnaire, we identified that CF adults express various unmet needs that extend beyond usual respiratory and nutritional concerns or treatment adherence. The interest of this questionnaire by health care team for improving therapeutic management of CF patients remains to be validated.
trial registrationThe study was registered on ClinicalTrials.gov (NCT02924818) on 5th October 2016.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.