ArticleCancer medicine2021
Patient participation in multidisciplinary tumor conferences: How is it implemented? What is the patients' role? What are patients' experiences?
Article in Cancer medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Patient Participation in Organ Transplant Selection Meetings: A Qualitative Study.JAMA network open · 2026Article
- Article
- The initiation of the second-step intradisciplinary tumor board discussion and its impact on treatment decision. Retrospective data analysis of 12 years' experience in a tertiary oncology center.Frontiers in oncology · 2025Article
- Patient and Support Person Satisfaction Following a Whole Health-Informed Interdisciplinary Pain Team Meeting.Federal practitioner : for the health care professionals of the VA, DoD, and PHS · 2024Article
- Treatment confidence and patient participation in multidisciplinary tumor conferences: A structural equation modeling approach.Cancer medicine · 2024Observational
- Shared-Decision-Making Experiences in Breast Cancer Care with and without Patient Participation in Multidisciplinary Tumor Conferences: A Mixed-Methods-Study.Journal of multidisciplinary healthcare · 2023Article
- How shared is decision-making in multidisciplinary tumour conferences with patient participation? An observational study.Health expectations : an international journal of public participation in health care and health policy · 2022Observational
- Patient participation in multidisciplinary tumor conferences: How is it implemented? What is the patients' role? What are patients' experiences?Cancer medicine · 2021Article
- Improved Implementation of Tumor Board Decisions: A Retrospective Single Center Observational Study in Germany.In vivo (Athens, Greece)Observational
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17 authors.
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Abstract
backgroundPrior research has shown that around 5%-7% of patients in breast cancer centers in Germany participate in the discussion of their own case within a multidisciplinary tumor conference (MTC). The PINTU study is one of the first to research this practice. The objective is to describe (a) how patient participation in MTCs is implemented, (b) what is the role of patients, and (c) how patients experience MTCs.
methodsMTCs in six breast and gynecological cancer centers in North Rhine-Westphalia, Germany, with and without patient participation, are studied prospectively by (non)participatory, structured observation. Breast and gynecological cancer patients completed surveys before, directly after, and 4 weeks after MTC participation. Data are analyzed descriptively.
resultsCase discussions of a sample of n = 317 patients (n = 95 with MTC participation and n = 222 without) were observed. Survey data were obtained from n = 242 patients (n = 87 and n = 155). Observational data showed heterogeneity in the ways MTC participation was practiced. Among participating patients, 89% had the opportunity to express their opinion and 61% were involved in decision-making. Whereas most patients reported positive experiences and would recommend participation, some had negative experiences and regretted participating.
conclusionsDue to a lack of recommendations, hospitals implement patient participation in MTCs in many different ways. So far, it is unknown which setting and procedures of MTC participation are beneficial for patients. However, existing evidence on communication in cancer care together with this exploratory study's findings can build the basis for developing recommendations for hospitals that invite their patients to MTCs. CLINICAL TRIAL REGISTRATION NUMBER: German Clinical Trials Register Nr. DRKS00012552.
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