ArticleAlzheimer's & dementia (New York, N. Y.)2021
Persons with dementia and informal caregivers prioritizing care: A mixed-methods study.
Article in Alzheimer's & dementia (New York, N. Y.), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Older caregivers' responsibilities and strategies for their cohabiting partners living at home-a qualitative systematic literature review.Frontiers in public health · 2025Pooled it
- Dyadic Discrete Choice Experiments Enable Persons with Dementia and Informal Caregivers to Participate in Health Care Decision Making: A Mixed Methods Study.Journal of Alzheimer's disease : JAD · 2023Pooled it
- 'Doing it together?' A dyadic qualitative study of perceptions, facilitators, barriers and expectations for physical activity in dementia.Age and ageing · 2026Article
- The Participation of Older Persons in the Adoption of Age-Friendly Care Models in Hospital Settings: A Scoping Review.Nursing & health sciences · 2026Article
- Article
- Designing an mHealth application for informal carers concerning the management of behavioural and psychological symptoms of dementia: a need analysis survey.BMC health services research · 2024Article
- "WOOP is my safe haven": A qualitative feasibility and acceptability study of the Wish Outcome Obstacle Plan (WOOP) intervention for spouses of people living with early-stage dementia.International journal of geriatric psychiatry · 2024Article
- Article
- Designing Inclusive Qualitative Research with Carers of People Living with Dementia: Methodological Insights.Healthcare (Basel, Switzerland) · 2023Article
- Sociodemographic structure and health care-related outcomes of community-dwelling dementia caregiving dyads: a latent class replication study.BMC health services research · 2023Article
- Dynamics of Interaction among Professionals, Informal Supporters, and Family Caregivers of People with Dementia along the Dementia Care Pathway: A Nationwide Survey in Japan.International journal of environmental research and public health · 2023Article
- Persons with dementia and informal caregivers prioritizing care: A mixed-methods study.Alzheimer's & dementia (New York, N. Y.) · 2021Article
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Authors and funding
6 authors.
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Abstract
introductionMore persons with dementia are residing in the community as many countries shift from residential care to home and community care. Although there are many forms of care and support available to avoid crisis situations and prolong community living, it remains unclear how these are valued by community-dwelling persons with dementia and their informal caregivers. Understanding perspectives of persons with dementia and informal caregivers on care characteristics is a vital step in valuing care services. This study aims to prioritize care characteristics for community-dwelling persons with dementia and informal caregivers with the use of an innovative mixed-methods approach.
methodsSix mixed focus groups were conducted in The Netherlands with persons with dementia (n = 23) and informal caregivers (n = 20), including a quantitative ranking exercise that prioritized seven care and support characteristics from "most important" to "least important," followed by a group discussion about the prioritization. Audio recordings were transcribed and analyzed using thematic analysis.
resultsThe ranking exercise and discussion showed that persons with dementia favored in-home care, help with daily activities, and social activities, whereas informal caregivers favored social activities, information about dementia, navigating the health care system, and emotional support. DISCUSSION: Persons with dementia prioritized day-to-day activities, whereas informal caregivers preferred assistance with organizing care and coping with caregiving. This study created a method to capture the care preferences of persons with dementia and informal caregivers.
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