ArticleInternet interventions2021
Reasons for not reaching or using web-based self-management applications, and the use and evaluation of Oncokompas among cancer survivors, in the context of a randomised controlled trial.
Article in Internet interventions, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 25 citations in OpenAlex.
- Patient-reported outcome measurement implementation in cancer survivors: a systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Internet Attachment-Based Compassion Therapy for Adults With Chronic Medical Conditions: Randomized Controlled Trial.Journal of medical Internet research · 2026Trial
- Article
- Digital Health Interventions Providing Behavioral Assessment and Goal Prioritization Support: Scoping Review.Journal of medical Internet research · 2025Article
- Reasons for non-participation and dropout in a longitudinal study of an app-based support service among adult patients in a psychiatric outpatient setting during the COVID-19 pandemic.Frontiers in psychiatry · 2025Article
- Aligning organisational priorities and implementation science for cancer research.BMC health services research · 2024Article
- Home-based self-management multimodal cancer interventions & cardiotoxicity: a scoping review.Cardio-oncology (London, England) · 2024Article
- Review
- Breast Cancer Survivors' Attitudes toward eMental Health: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2023Article
- Implementing a PROACTive Care Pathway to Empower and Support Survivors of Breast Cancer.JCO oncology practice · 2023Article
- Efficacy of the eHealth application Oncokompas, facilitating incurably ill cancer patients to self-manage their palliative care needs: A randomized controlled trial.The Lancet regional health. Europe · 2022Article
- Review
- Special issue on digital health interventions in chronic medical conditions: Editorial.Internet interventions · 2022Article
- Article
- Symptom monitoring in cancer and fully automated advice on supportive care: Patients' perspectives on self-management strategies and the eHealth self-management application Oncokompas.European journal of cancer care · 2021Article
- Article
Corrections and comments
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Authors and funding
29 authors at 15 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe web-based self-management application Oncokompas was developed to support cancer survivors to monitor health-related quality of life and symptoms (Measure) and to provide tailored information (Learn) and supportive care options (Act). In a previously reported randomised controlled trial (RCT), 68% of 655 recruited survivors were eligible, and of those 45% participated in the RCT. Among participants of the RCT that were randomised to the intervention group, 52% used Oncokompas as intended. The aim of this study was to explore reasons for not participating in the RCT, and reasons for not using Oncokompas among non-users, and the use and evaluation of Oncokompas among users.
methodsReasons for not participating were assessed with a study-specific questionnaire among 243 survivors who declined participation. Usage was investigated among 320 participants randomised to the intervention group of the RCT via system data and a study-specific questionnaire that was assessed during the 1 week follow-up (T1) assessment.
resultsMain reasons for not participating were not interested in participation in scientific research (40%) and not interested in scientific research and Oncokompas (28%). Main reasons for not being interested in Oncokompas were wanting to leave the period of being ill behind (29%), no symptom burden (23%), or lacking internet skills (18%). Out of the 320 participants in the intervention group 167 (52%) used Oncokompas as intended. Among 72 non-users, main reasons for not using Oncokompas were no symptom burden (32%) or lack of time (26%). Among 248 survivors that activated their account, satisfaction and user-friendliness were rated with a 7 (scale 0-10). Within 3 (IQR 1-4) sessions, users selected 32 (IQR 6-37) topics. Main reasons for not using healthcare options in Act were that the information in Learn was already sufficient (44%) or no supportive care needs (32%). DISCUSSION: Main reasons for not reaching or using Oncokompas were no symptom burden, no supportive care needs, or lack of time. Users selected many cancer-generic and tumour-specific topics to address, indicating added value of the wide range of available topics.
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