ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Patient engagement in care: A scoping review of recently validated tools assessing patients' and healthcare professionals' preferences and experience.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
40 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
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- Insights towards formation of management framework for persons with age-related appetite loss: a qualitative analysis of interviews with healthcare professionals.European geriatric medicine · 2026Article
- Primary and secondary patient participation - a qualitative study of healthcare professionals' perceptions and experiences.BMC health services research · 2026Article
- Development and validation of a questionnaire measuring healthcare professionals' individual perceptions of advanced practice nurses' contributions to team functioning: a modified international Delphi approach.International journal of nursing studies advances · 2026Article
- Exploring Patient Experiences of Symptom Support From Healthcare Professionals in Acute and Chronic Illness: A Qualitative Study.Scandinavian journal of caring sciences · 2026Article
- Patient Participation in Clinical Ethics Interventions: A Requirement of Procedural and Epistemic Justice.Bioethics · 2026Article
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- An eMERGEing definition of patient engagement in genetic counseling.Journal of genetic counseling · 2025Article
- Shared Decision-Making Tools Implemented in the Electronic Health Record: Scoping Review.Journal of medical Internet research · 2025Article
- Psychometric Properties of the TWente Engagement with Ehealth Technologies Scale (TWEETS) Among Patients with Hypertension in Italy.High blood pressure & cardiovascular prevention : the official journal of the Italian Society of Hypertension · 2025Article
- American Medical Extended Reality Association Expert Consensus: Best Practices for Patient and Public Involvement in Medical Extended Reality Research.Journal of medical extended reality · 2025Article
- Initial co-ideation phase of a shared decision-making tool aimed at promoting physical activity in primary care: views expressed by patients, academics, and healthcare professionals.Frontiers in public health · 2025Article
- The Current Status and Influencing Factors of Hospitalized Patients' Propensity to Engage in Patient Safety: A Descriptive Cross-Sectional Study.Journal of nursing management · 2025Article
- The burden of breast cancer in Poland: current status and future directions.Frontiers in oncology · 2025Review
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Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient engagement in care is a priority and a key component of clinical practice. Different approaches to care have been introduced to foster patient engagement. There is a lack of a recent review on tools for assessing the main concepts and dimensions related to patient engagement in care.
objectiveOur scoping review sought to map and summarize recently validated tools for assessing various concepts and dimensions of patient engagement in care. SEARCH STRATEGY: A scoping review of recent peer-reviewed articles describing tools that assess preferences in and experience with patient engagement in care was conducted in four databases (Ovid Medline, Ovid EMBASE, Cochrane Database of Systematic Reviews, CINAHL-EBSCO). We adopted a broad definition based on the main concepts of patient engagement in care: patient-centredness, empowerment, shared decision-making and partnership in care. MAIN
resultsOf 2161 articles found, 16, each describing a different tool, were included and analysed. Shared decision-making and patient-centredness are the two main concepts evaluated, often simultaneously in most of the tools. Only four scales measure patient-centredness, empowerment and shared decision-making at the same time, but no tool measures the core dimensions of partnership in care. Most of the tools did not include patients in their development or validation or just consulted them during the validation phase. DISCUSSION AND
conclusionThere is no tool coconstructed with patients from development to validation, which can be used to assess the main concepts and dimensions of patient engagement in care at the same time. PATIENT AND PUBLIC CONTRIBUTION: This manuscript was prepared with a patient expert who is one of the authors. Vincent Dumez, who is a patient expert and codirector of the Center of Excellence on Partnership with Patients and the Public, has contributed to the preparation of the manuscript.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.