Evidence map›Paper›PMID 34398787›Full record

ArticleJMIR formative research2021

Development of a Mobile Health App (TOGETHERCare) to Reduce Cancer Care Partner Burden: Product Design Study.

Ingrid Oakley-Girvan, Sharon Watkins Davis, Allison Kurian, Lisa G Rosas, Jena Daniels, Oxana Gronskaya Palesh, Rachel J Mesia, Arif H Kamal, Michelle Longmire, Vasu Divi

Registry-linked trialOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR formative research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04018677 (TOGETHER), which is not on this map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
1.3field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04018677 nacompletednot on this map

TOGETHER: Track Outcomes and Guidance, Technology for Health and Effective Resources

TypeinterventionalSponsorStanford UniversityRan2019 to 2022Enrolled14ConditionsCancerArmsUse of TOGETHERCare app
3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 18 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Review
  10. Review
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Ingrid Oakley-GirvanMedable Inc, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0003-0328-921X
Sharon Watkins DavisMedable Inc, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0001-6290-5196
Allison KurianStanford University, Stanford, CA, United States.ORCID https://orcid.org/0000-0002-6175-9470
Lisa G RosasStanford University, Stanford, CA, United States.ORCID https://orcid.org/0000-0003-4053-7972
Jena DanielsMedable Inc, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0002-7912-8482
Oxana Gronskaya PaleshStanford University, Stanford, CA, United States.ORCID https://orcid.org/0000-0002-5695-8678
Rachel J MesiaStanford University, Stanford, CA, United States.ORCID https://orcid.org/0000-0001-8085-8514
Arif H KamalDuke University, Durham, NC, United States.ORCID https://orcid.org/0000-0002-5235-9395
Michelle LongmireMedable Inc, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0003-2717-4900
Vasu DiviStanford University, Stanford, CA, United States.ORCID https://orcid.org/0000-0002-6219-6294
Stanford University · USAlbemarle (United States) · USDuke University · US

Funding

NCI NIH HHS HHSN261201700030C
6 · The paper itself

Abstract

backgroundApproximately 6.1 million adults in the United States serve as care partners for cancer survivors. Studies have demonstrated that engaging cancer survivors and their care partners through technology-enabled structured symptom collection has several benefits. Given the high utilization of mobile technologies, even among underserved populations and in low resource areas, mobile apps may provide a meaningful access point for all stakeholders for symptom management.

objectiveWe aimed to develop a mobile app incorporating user preferences to enable cancer survivors' care partners to monitor the survivors' health and to provide care partner resources.

methodsAn iterative information gathering process was conducted that included (1) discussions with 138 stakeholders to identify challenges and gaps in survivor home care; (2) semistructured interviews with clinicians (n=3), cancer survivors (n=3), and care partners (n=3) to identify specific needs; and (3) a 28-day feasibility field test with seven care partners.

resultsHealth professionals noted the importance of identifying early symptoms of adverse events. Survivors requested modules on medication, diet, self-care, reminders, and a version in Spanish. Care partners preferred to focus primarily on the patient's health and not their own. The app was developed incorporating quality-of-life surveys and symptom reporting, as well as resources on home survivor care. Early user testing demonstrated ease of use and app feasibility.

conclusionsTOGETHERCare, a novel mobile app, was developed with user input to track the care partner's health and report on survivor symptoms during home care. The following two clinical benefits emerged: (1) reduced anxiety among care partners who use the app and (2) the potential for identifying survivor symptoms noted by the care partner, which might prevent adverse events.

trial registrationClinicalTrials.gov NCT04018677; https://clinicaltrials.gov/ct2/show/NCT04018677.

Indexed as

cancercancer survivorcaregivercaregiver burdenfeasibilitymHealthmobile apponcologysmartphonesymptom reporting

Identifiers

PMID34398787
PMCPMC8398739
OpenAlexW3176432068

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.