Evidence map›Paper›PMID 34395923›Full record

ArticleWellcome open research2020

A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project.

Aura Cecilia Jimenez-Moreno, Cathy Anne Pinto, Bennett Levitan, Chiara Whichello, Christine Dyer, Eline Van Overbeeke, Esther de Bekker-Grob, Ian Smith, Isabelle Huys, Jennifer Viberg Johansson and 7 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Wellcome open research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Aura Cecilia Jimenez-MorenoWellcome Centre for Mitochondrial Research, Newcastle University, Newcastle-Upon-Tyne, NE2 4HH, UK.ORCID https://orcid.org/0000-0002-0488-9631
Cathy Anne PintoPharmacoepidemiology Department, Centre for Observational and Realworld Evidence, Merck & Co, Inc., Rahway, NJ, USA.
Bennett LevitanDepartment of Epidemiology, Janssen Research & Development, Titusville, NJ, USA.
Chiara WhichelloErasmus School of Health Policy & Management and Erasmus Choice Modelling Centre, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Christine DyerWellcome Centre for Mitochondrial Research, Newcastle University, Newcastle-Upon-Tyne, NE2 4HH, UK.
Eline Van OverbeekeDepartment of Clinical Pharmacology and Pharmacotherapy, University of Leuven, Leuven, Belgium.
Esther de Bekker-GrobErasmus School of Health Policy & Management and Erasmus Choice Modelling Centre, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Ian SmithJulius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands.
Isabelle HuysDepartment of Clinical Pharmacology and Pharmacotherapy, University of Leuven, Leuven, Belgium.
Jennifer Viberg JohanssonCentre for Research Ethics & Bioethics, Uppsala universitet, Uppsala, 75122, Sweden.ORCID https://orcid.org/0000-0001-9533-9274
Kate AdcockMuscular Dystrophy UK, London, UK.
Kristin BullockGlobal Patient Safety Department, Eli Lilly & Co., Indianapolis, IN, 46205, USA.ORCID https://orcid.org/0000-0001-6039-4222
Vikas SoekhaiErasmus School of Health Policy & Management and Erasmus Choice Modelling Centre, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Zhong YuanDepartment of Epidemiology, Janssen Research & Development, Titusville, NJ, USA.
Hanns LochmullerBrain and Mind Research Institute, University of Ottawa, Ottawa, Canada.
Ardine de WitJulius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands.ORCID https://orcid.org/0000-0002-1375-7657
Grainne S GormanWellcome Centre for Mitochondrial Research, Newcastle University, Newcastle-Upon-Tyne, NE2 4HH, UK.

Funding

Wellcome Trust
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Best Worst ScalingDiscrete Choice ExperimentIMI-PREFERmitochondrial diseaseMyotonic Dystrophypatient preferencesQ-methodologyrisk tolerancetreatment preferences.

Identifiers

PMID34395923
PMCPMC8356266

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.